The Cardiomyopathy Association (CMA) is a registered charity that helps people and their families affected by the heart muscle condition cardiomyopathy. We provide support and easy-to-understand information on the different types of cardiomyopathy. We have a freephone helpline (0800 0181 024) that is manned from 8.30am to 4.30pm on weekdays.
As well as the information on our website, we provide booklets on the three main types of cardiomyopathy - hypertrophic cardiomyopathy, dilated cardiomyopathy and arrhythmogenic right ventricular cardiomyopathy. We also have videos and CD Roms on hypertrophic and dilated cardiomyopathy.
We hold regional information days around the country at which cardiologists experienced in dealing with cardiomyopathy give presentations on the condition, latest treatments and research, and answer members' questions. We have support groups around the UK where members can learn more about the condition and share experiences. We also have a network of people affected by the condition who offer one-to-one support on the telephone.
The CMA has a long established link with the Specialist Inherited Cardiovascular Disease Clinic run by Professor William J. McKenna, a world expert in cardiomyopathy, at the Heart Hospital, London.
The association's work is recognised and supported by The British Heart Foundation and The British Cardiac Society.
The Cardiomyopathy Association meets a need unfulfilled by any other organisation and is supported solely by public donation. If you would like to join as a member or contribute to our work, please complete the forms found in the membership and funds section.
The CMA is run by a small dedicated team:
Chief Executive - Robert Hall
Office Manager - Barbara Taylor
Membership Secretary - Anne Foster
Information Manager - Sarah Dennis
Senior Fundraiser - Chris Hirst
Events Fundraiser - Celia Blakeway-Phillips
Office Assistant - Daniel Jackson
For out-of-hours press inquiries, call Sarah Dennis on 07806 512322.
Registered charity number 803262
Dedicated to Damian McLoughlin, who died age 20 of cardiomyopathy. This site is supported by Damian's family and friends.
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