The CMA is publishing a new information booklet entitled Cardiomyopathy in Children and Young People.
The A5 colour guide is for parents and carers of children with the condition and older children who are affected by it.
The 28-page booklet covers everything from diagnosis and treatment to growing up with the condition, school, sports, nutrition, immunisations, careers, holidays and lifestyle issues such as alcohol and drugs.
The publication, which is available free of charge, also looks at the effects on the family and latest research into the condition, and has a section on the most common questions asked by children and their parents.
The book has been written by cardiomyopathy experts at the Heart Hospital and Great Ormond Street Hospital in London. It has been designed and produced by the CMA with funding from the Wates Foundation, an independent grant-making family trust dedicated to improving the quality of life of five to 25-year-olds.
To order a copy, email sarah.dennis@cardiomyopathy.org giving your name and full address.
Our quartlerly newsletter CMA News (sent to CMA members) contains many varied and interesting health articles relating to children and young people with cardiomyopathy. Please find below recent examples.
Telling children they have cardiomyopathy
Getting children to take their medicine
Handling everyday illnesses in children with cardiomyopathy
Making decisions about genetic testing
Anne-Marie's here to help young people
If you want to ensure you recieve a copy of CMA News Join Here
Dedicated to Damian McLoughlin, who died age 20 of cardiomyopathy. This site is supported by Damian's family and friends.
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