The
Cardiomyopathy
Association

Key contacts to help you

The CMA has a network of key contacts who offer one-to-one support on the telephone. Our key contacts, who have undergone training, either suffer from the condition or have family members affected.

We have key contacts with hypertrophic cardiomyopathy, dilated cardiomyopathy and arrhythmogenic right ventricular cardiomyopathy. They have undergone a range of medical treatments, including having surgery or medical devices, such as pacemakers or internal defibrillators (ICDs), fitted. Two have undergone heart transplants.

Some are parents of children with cardiomyopathy. One developed a particular type of cardiomyopathy associated with pregnancy after having her second child.  We also have key contacts who have tragically lost a partner or child. But they are all keen to help others in similar difficulties.

Our volunteers range in age from 27 upwards. We also have two key contacts who are 18 and support other young people by email.

Our key contacts live all over England, Wales, Scotland and Northern Ireland.  Each year we hold a training day (the picture shows those attending a recent training day) to help others decide if they would like to join the network.

If you would like to speak to a key contact, please let us know. You can call our freephone number 0800 0181 024 or email info@cardiomyopathy.org  .

If you are interested in becoming a CMA Key Contact please contact sarah.dennis@cardiomyopathy.org  The next training day is being held at the Holiday Inn, Marlborough Road, Swindon, on Saturday, March 14th, 2009.

Dedicated to Damian McLoughlin, who died age 20 of cardiomyopathy. This site is supported by Damian's family and friends.