The
Cardiomyopathy
Association

NSF for Arrhythmia & Sudden Death

National Service Framworks (NSF) are government publications aimed at improving standards of healthcare. The Department of Health define NSFs as: 

National service frameworks (NSFs) are long term strategies for improving specific areas of care. They set measurable goals within set time frames. They:

When the NSF for Coronary Heart Disease was first launched in 2000 no mention was made of cardiomyopathy and other inherited cardiovascular disorders. After prolonged lobbying by patient groups the Government agreed to add a further chapter to this document to include conditions causing rhythm disturbance of the heart and the way the NHS responds to sudden cardiac death. The document was launched in March 2005 and contained many 'quality standards' recommendations for services.

The Cardiomyopathy Association served on the expert groups which devised the chapter and now serves on the Department of Health Implementation Board. To read the full document, either click on the document image or click here . 

The NSF for Arrhythmia & Sudden Death is one of the most important developments for people affected by cardiomyopathy in recent years.

With the recent change of Government the 5 year life-span of the document is now completed and there have been some improvements made in the availablity and qualityof services for people affected by cardiomyopathy. These achievements must be seen as a starting point and the progress must be maintained.

Progress report for 2008.

Dedicated to Damian McLoughlin, who died age 20 of cardiomyopathy. This site is supported by Damian's family and friends.