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World registry on pregnancy cardiomyopathy set up

World registry on pregnancy cardiomyopathy set up

A world registry on pregnancy related cardiomyopathy has been set up to record the number of cases and how it affects the health of the women and their babies.

Peripartum cardiomyopathy can lead to heart failure in previously healthy women during the last months of pregnancy or the first few months after the birth.

Mortality can be high if the condition is recognised late and full recovery is reported in less than half of patients six months later.

The European Society of Cardiology EurObservational Registry will also look at how women are diagnosed and how they are treated.
Data will be collected online on the possible risk factors, diagnosis, standard management of their conditions, and medical interventions for patients showing signs and symptoms of peripartum cardiomyopathy.

Data on the women’s health after six and 12 months will be collected.

It is hoped the register will help cardiologists learn more about the disease.

The use of drugs and other treatments will be left completely to the participating cardiologists. No recommendations for evaluating, managing or treatmenting the condition will be put forward during the study.

by CMA Manager on 04-Mar-13 11:00

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The Cardiomyopathy Association's Registered Charity Number is 803262.
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