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Speak up for cardiomyopathy patients

Speak up for cardiomyopathy patients

People affected by cardiomyopathy are being sought to give their views on shaping specialised health services.

Their voices will be heard at the heart of service development and improvement, says the new national director of specialised services James Palmer.

Cardiomyopathy is one of the specialist conditions that will be commissioned by a national specialised services board rather than local GP commissioning groups.

The national body is now looking for current and recent patients and their carers to join clinical reference groups (CRGs).  CRGs will be the main sources of clinical  advice to the specialised services’ commissioners.

There are over 70 CRGs, but the key one for patients with cardiomyopathy is called A9 Complex Invasive Cardiology (CIC).  For some patients and carers A10 Cardiac Surgery (CSY) and A18 Heart and Lung Transplantation (HLT) may also be relevant.

Mr Palmer says: “These positions offer a real opportunity to bring a patient and carer perspective to specialised health services.  We would like to hear from people who use or have used specialised health services to ensure that we are hearing their voices at the heart of service development and improvement.”

The CMA’s chief executive Robert Hall said: “We are very keen to see people affected by cardiomyopathy getting involved in the development of cardiomyopathy services and this is an ideal opportunity.”

The closing date for applications is Friday, April 26th, 2013.

Patient representatives’ responsibilities will include reading papers, taking part in phone conferences, and debating issues by email and internet conferences. There may be an initial face-to-face meeting to help develop working relationships.

Membership of the CRGs will also include patient organisations, clinicians, commissioners, public health and pharmacy specialists and professional organisations such as medical royal colleges.

For more information about the CRGs see the official site here

To apply, see here

by CMA Manager on 08-Apr-13 15:47

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The Cardiomyopathy Association's Registered Charity Number is 803262.
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