The Cardiomyopathy Association actively campaigns for improved services for families affected by cardiomyopathy. Some improvements have been achieved in recent years following the publication of the National Service Framework chapter on Arrhythmia & Sudden Death, however, there is still much work to do.
You can help us by writing to your M.P. or Assembly representative highlighting the need for improved specialist services to provide effective treatment for cardiomyopathy.
You can also get involved in your local Cardiac Network through the Patient, carer and public involvement (PCPI). This provides the essential patient voice from those who have first-hand experience of cardiac services.
Use the links below to find more information and contact us if you wish to discuss ways in which you can help us to fight cardiomyopathy.
Dedicated to Damian McLoughlin, who died age 20 of cardiomyopathy. This site is supported by Damian's family and friends.
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