Know your heart story

Find out more about our campaign

Find out more about our campaign

Find out more about our campaign to 'piece together' your heart story and how it can help you.

Share your experiences

Share your experiences

Share your experiences of being diagnosed with cardiomyopathy by taking our online survey.

My heart story: every heart has a story. Do you know yours? 

There are at least 160,000 people in the UK living with cardiomyopathy.  Did you know that 1 in 3 people were initially misdiagnosed and that many more are living with the condition and don’t know they have it?

Diagnosing cardiomyopathy quickly can help save lives.
Some people don’t realise that they have the condition – too often the signs are missed, or doctors just don’t have all the information they need to make the diagnosis. Misdiagnosis can make the condition worse with the likelihood of sudden cardiac death.  

This needs to change.

This October, our national campaign will raise awareness of the signs and symptoms of cardiomyopathy and highlight the importance of knowing a family history of heart disease. We want to show how knowing your 'heart story' could save your life.

If you have a history of cardiomyopathy or other heart conditions in your family, we urge you to tell your GP on your next visit.  This information could help diagnose a heart condition at any point in your future and save lives.

Our campaign

Find out more about the aims of our campaign.

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Tell us your story

Share your experiences about diagnosis and genetic testing in our online survey.

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Get involved

Find out how you can get involved in #MyHeartStory.

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Know your heart story

Find out how knowing your heart story can help to diagnose cardiomyopathy.

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Campaign resources

See our campaign poster and order copies online.

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Top tips for a healthy heart

Read our top tips for general heart health.

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Lifestyle management

Ways to manage your heart through lifestyle, for people with cardiomyopathy.

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Useful organisations

A list of charities and organisations which provide information about support about other heart conditions.

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Resources for professionals

See our resources for healthcare professionals

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Support us

Find out more about how you can help support our vital work

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Hear more from us

Sign up here to hear more from us.

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This campaign has been partly funded by an unrestricted
educational grant from Novartis Pharmaceuticals UK