Understanding cardiomyopathy

Understanding cardiomyopathy

More information on the different types of cardiomyopathy, symptoms, treatment and advice.

Bristol information day

Bristol information day

Find out more about cardiomyopathy, the latest treatments and research at our Cardiomyopathy UK information day in Bristol

Great Pancake Party

Great Pancake Party

Join our Great Pancake Party and help support people with Cardiomyopathy

Find a support group

Find a support group

Find out more about cardiomyopathy and meet others with the condition at one of our support groups

Run to help families

Run to help families

Get your running shoes on and help families affected by cardiomyopathy

Living with cardiomyopathy

Living with cardiomyopathy

Our new living with cardiomyopathy booklet is available to order for free

Providing support, promoting research.

Our vision is for everyone affected by the heart muscle disease cardiomyopathy to lead long and fulfilling lives. We provide information and support to families and we help train doctors and nurses.

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Your support matters


Could provide information packs to five families

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Patient and family information days

Learn about the different types of cardiomyopathy, latest treatments and developments in research.

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For medical professionals

As well as providing information and support to patients, Cardiomyopathy UK helps medical staff with a variety of services. 

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Latest News

Having an internal defibrillator (ICD) has a low but not zero risk

8th February 2016

Researchers say careful consideration of the risks and benefits of device needed.

Link between psychological well-being and cardiomyopathy being explored

5th February 2016

Those aged 18 and over with cardiomyopathy asked to take part in short survey.

Find out more about health research at open day on Monday

4th February 2016

Biomedical Research Centre at Imperial College seeks patient views.

See all our news


Do you run?

Last Post: 7/02/2016 - 0 Replies

Extremely grateful

Last Post: 6/02/2016 - 9 Replies

How long since you were diagnosed?

Last Post: 5/02/2016 - 0 Replies

What's Your Cardiomyopathy?

Last Post: 5/02/2016 - 37 Replies

Sir David Frost's Son Not told of HCM risk

Last Post: 1/02/2016 - 0 Replies
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Get help from a cardiomyopathy support nurse

Our information helpdesk is there to support you, whenever you need us.

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