Support groups offer families the chance to find out much more about cardiomyopathy and its treatments, and the opportunity to meet others with it so they can share problems and experiences.
Meetings are always positive and usually fun, with speakers including representatives of the CMA, cardiologists, arrhythmia nurses, cardiac dieticians and pacemaker technicians.
Some meetings are held in hospitals or local halls, while some groups have some meetings at their local pub. Groups also enjoy social activities such as Christmas lunches (the picture shows our West Midlands Cardiomyopathy Support Group at their Christmas dinner) and sponsored walks.
Some groups meet every month, while others meet three or four times a year.
More and more members of the CMA are starting support groups around the UK. In the past two years new groups have started in Scotland, Northern Ireland, East Anglia, Essex, Northampton and Devon in addition to established groups in Darlington, South Wales and the West Midlands.
If you would like more information about a CMA support group near you, please email us.
The Cardiomyopathy Association supports groups around the country. If you are thinking of setting up a group, do get in touch with Sarah Dennis, by calling 01494 791224 or email, as she can advise you on the best way forward and tell you how the CMA can support you. or call her on freephone 0800 0181 024 .