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Information and advice for people affected by arrhythmogenic right ventricular cardiomyopathy

Arrhythmogenic right ventricular cardiomyopathy (ARVC) is an inherited heart muscle disorder where damaged heart muscle is gradually replaced by scar tissue and fat. A recognised cause of sudden death in the young, ARVC may cause abnormal electrical heart rhythms and weakening of the pumping action of the heart.

In many cases, the disease does not limit the quality or duration of life. However, a proportion of people with ARVC develop complications, all of which are treatable. Evaluation and follow-up by a cardiologist is therefore recommended.

More details about ARVC and latest treatments are included in our booklet on the condition. To read it click on the booklet image or link below, or email us for a free copy. The booklet has been produced in consultation with doctors, other medical staff and those with the condition. It seeks to answer many of the questions and concerns of patients and their relatives.

The booklet is for anyone interested in learning more about ARVC. The information is subdivided into three sections. The opening section explains the basic functioning of the heart and introduces the terminology used in medical literature. The middle section presents the current view of the underlying causes, diagnosis and treatment of the condition. The final part aims to address the main concerns and queries raised by patients and their relatives.

The contents of the booklet are not formal guidelines for assessment or treatment. Clinical care is tailored according to individual needs. Each person must be assessed individually. For more details about new criteria for diagnosing ARVC click here

If you have further questions, please contact us on freephone 0800 0181024 or by email
 
  
 
Arrhythmogenic right ventricular cardiomyopathy
information booklet
 
To order a copy of this booklet please email us
 
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The Cardiomyopathy Association's Registered Charity Number is 803262.
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