As well as providing information and support to patients, Cardiomyopathy UK helps medical staff with a variety of services.
We have a factsheet designed to help you spot cardiomyopathy in patients which includes a checklist to assess risk factors - recognising cardiomyopathy factsheet
Advice and support for you
Cardiomyopathy introductory videos
We have produced two informative videos aimed at medical professionals:-
We can provide you with information on the different types of cardiomyopathy with advice and assistance from our cardiomyopathy support nurses, email email@example.com or call 01494 791224, Mon-Fri, 8:30am-4:30pm
Advice and support for your patients
Medical staff can also use our network of affected volunteers who provide support to others over the telephone or by email. We have 80 volunteers who have many types of cardiomyopathy. They vary in age from 21 to over 60.
Many have biventricular pacemakers and internal defibrillators (ICDs). Others have had treatments including a myectomy, septal ablation and heart transplant. Also on the network are women who have had peripartum cardiomyopathy.
All have undergone brief training with the charity. For more details, contact us or call 01494 791224.
Patient support groups
We have around 20 support groups across the UK.
For more details see our support group section
Free patient literature
We can send you:
- separate booklets on dilated, hypertrophic and arrhythmogenic right ventricular cardiomyopathy
- a booklet on living with cardiomyopathy
- a booklet on cardiomyopathy in children and young people for parents
- a booklet on cardiomyopathy in children designed for children to read
- copies of our magazine, My Life, featuring news on developments in cardiomyopathy care, latest research, medical articles and patient stories
Presentation videos from our 2016 national cardiomyopathy clinical conference
- Rare causes of dilated cardiomyopathy and how to spot them - Dr Gerry Carr-White, Consultant Cardiologist, St Thomas’ Hospital, London
- The heart in disorders of cardiac metabolism - Professor Giuseppe Limongelli, Assistant Professor of Cardiology, Monaldi Hospital, Naples
- Broadening the spectrum of arrhythmogenic right ventricular cardiomyopathy (ARVC) - Professor Claudio Rapezzi, Associate Professor, University of Bologna, Bologna
- Role of CMR and nuclear imaging in diagnosis - Dr Leon Menezes, Consultant Radiologist and Nuclear Medicine Physician, University College London Hospitals NHS Foundation Trust
- Differential diagnosis of heart muscle disease in children and adolescents - Dr Juan Pablo Kaski, Consultant Paediatric Cardiologist & Honorary Senior Lecturer, Great Ormond Street Hospital & UCL Institute of Cardiovascular Science, London
- When to suspect myocarditis - Dr Saidi Mohiddin, Consultant Cardiologist in Inherited and Acquired Heart Muscle Disease and Cardiac Magnetic Resonance Imaging, Barts Heart Centre, London
- Treatment options in myocarditis - By Dr Neha Sekhri, Consultant Cardiologist, Barts Health NHS Trust, London
- Treatment frontiers in cardiac amyloidosis - By Dr Giampaolo Merlini, Director, Amyloidosis Research and Treatment Center, University of Pavia, Italy.
Dates for 2017
The Cardiomyopathy UK national clinical conference will be held on Friday 15 September at the Cavendish Conference Centre, London. Further details to follow.
For more details about our events, email Rona Eade or call on 01494 791 224.
If you have any queries about cardiomyopathy or how Cardiomyopathy UK can help you, please contact us