My Life

Our My Life magazine, produced quarterly, features articles about developments in care, latest research, patient stories and our charity news.

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Autumn 2017: Rarer cardiomyopathies

Also:

  • Coping with worry
  • Preventing and managing heart device infections
  • Clinical psychologist Graeme Gillespie talks about reducing worry

 

 

Summer 2017 - "I've made a good recovery and am now sharing my story with others."  Abi talks about her cardiomyopathy and raising awareness.

Also:

  • Five steps to emotional well-being
  • Helping your affected child move to adult heart care services
  • #teamcardio's highlights

January 2017 - "My diagnosis made me lose confidence.  But walking, tai chi and cardiac rehab have restored by self-worth." Suzanne talks about coping with the emotional impact of having cardiomyopathy.

Also:

  • Focussing on the important things in life can help people with long-term conditions
  • Resuming sex after a diagnosis of cardiomyopathy
  • #teamcardio's highlights

 

October 2016 - "Our son Elliott lived on a heart pump for a year. Now he's cheeky like other toddlers." Dad Adrian talks about enjoying parenthood at last.

Also:

  • Coping with diagnosis of cardiomyopathy in a child
  • How our information days help families
  • #teamcardio's highlights


 

July 2016 - '‘Working round my heart transplant gave me more to focus on" - Karen talks about how cardiomyopathy has affected her life.


 

April 2016 - '‘Helping with research made me more positive and gave me back some control" - David talks about his involvement with stem cell research for cardiomyopathy.


 

January 2016 - '‘I got so much help from a support volunteer that I later became one too’' - Nancy tells her cardiomyopathy story


November 2015 - '‘I couldn’t walk to my front gate but now I’ve competed in the British Transplant Games’' - Jon's story


 

September 2015 - 'Diagnosed as a baby' - Jenny's story


 

July 2015 - Alison's story & patient portals for better care


 

April 2015 - "We won't let cardiomyopathy beat us"