National conference 2017

Knowing more, living better

2017 Cardiomyopathy UK National conference

18 November 2017

The theme for this year’s conference is the cardiomyopathy family: supporting everyone affected by cardiomyopathy.

Booking for the conference is now closed.

The conference will be on Saturday 18 November at the Royal National Hotel in London.

Draft programme

Download the programme here

Please note: this is a draft programme and may change.

9.00 Registration
9.30 Welcome
9.40 Keynote presentation - living with cardiomyopathy
10.00 Types of cardiomyopathy - this session focuses on the individual types of cardiomyopathy, including the causes, symptoms and treatment options. One from the following options:

  • Hypertrophic cardiomyopathy
  • Dilated cardiomyopathy
  • Arrhythmogenic cardiomyopathy
  • Restrictive cardiomyopathy
  • Takotsubo cardiomyopathy
  • Myocarditis

11.00 Coffee break

11.20 Living with treatment optionsthis session focuses on treatment options for cardiomyopathy: how people can be supported to make informed decisions about treatment, and prepare and come to terms with the impact of treatment on lifestyle. One from the following options:

  • Living with medication and who can support you to manage your medication
  • Preparing for and living with an ICD
  • Preparing for and life after surgery (myectomy, ablations)
  • Preparing for and living well while waiting for a heart transplant

12.20 Genetics and the family - this session focuses on the role of genetics in the development of cardiomyopathy and the emotional aspects of living with a genetic condition on the individual and on the family.
12.20 Cardiomyopathy: the role of genetics
12.40 The genetic family tree – the impact on the family

1.00 Lunch & exhibition - lunchtime will include a range of exhibitions and sessions to get involved in, including self-management and holistic therapies groups. 

2.20 The impact of cardiomyopathy and the family - this session focuses on the impact that cardiomyopathy can have on the individual and those close to them. One from the following four options:

  • Adapting to the changes and challenges that a diagnosis can have on the whole family and the ‘new normal’
  • The emotional impact of cardiomyopathy – sharing experiences: for people with the condition
  • The emotional impact of cardiomyopathy on you – sharing experiences: for family and carers
  • The emotional impact of cardiomyopathy on you – sharing experiences: for young people

3.00 Afternoon tea break

3.20 Cardiomyopathy and lifestyle - this session focuses on managing some of the practical aspects of the condition.One from the following four options:

  • Welfare benefits
  • Employment issues
  • Cardiac rehab – exercise and a healthy lifestyle
  • Knowing your rights and navigating the NHS
  • Support for children, young people and young adults

4.00 The Cardiomyopathy UK awards – a celebration
4.20 Thank you
4.30 Close


The conference will be at the Royal National Hotel (opens new window), 38-51 Bedford Way, London WC1H 0DG


See map to the venue