Latest news

Campaigning in 2018

17th April 2018

Find out more about our latest campaign and how sharing your experiences will help inform what we do.

Maddy's story

6th April 2018

A young and active woman with a zest for life, Maddy was just 18 when she was diagnosed with cardiomyopathy. Read her story here.

Preventing sudden death in hypertrophic cardiomyopathy

29th March 2018

A new worldwide study has validated the ESC recommendations of predicting and preventing sudden cardiac death in patients with hypertrophic cardiomyopathy (HCM).

Wearable cardioverter defibrillator does not reduce sudden death mortality

15th March 2018

Trials of the Vest Prevention of Early Sudden Death Trial (VEST) found that the device reduced the overall risk of early death for heart attack survivors – but not the risk of sudden cardiac death.

Supporting Warwick’s hearts with charity information day

13th March 2018

Our Warwick information day receives local support and recognition to encourage more people to attend the day

Changes to the Organ Donation Register in England on the way

22nd February 2018

There is real shortage of organ donors in the UK, with only 1 in 3 people on the donor register. Right now there are around 250 people waiting for a new heart and most of these people will have cardiomyopathy.

4 in 10 cardiomyopathies are genetic

26th January 2018

4 in 10 cardiomyopathies are genetic, according to a European Society of Cardiology (ESC) study published today in European Heart Journal.

Former England rugby player supporting Cardiomyopathy UK

23rd January 2018

Lee Mears, former Bath and England rugby player is supporting Cardiomyopathy UK with our recent #MyHeartStory campaign and encouraging families to talk about their heart history.

Researcher looking for newly diagnosed experiences of cardiomyopathy

18th January 2018

PHD Researcher Jennifer Rees is looking for newly diagnosed experiences of cardiomyopathy and wants to hear from you!

Mumsnet supports our #MyHeartStory campaign

11th January 2018

Mumsnet - the UK's largest parenting website has supported and shared our #MyHeartStory campaign this January.