Campaigning in 2018
17th April 2018
Find out more about our latest campaign and how sharing your experiences will help inform what we do.
Latest news
Category: Campaigns
Changes to the Organ Donation Register in England on the way
22nd February 2018
There is real shortage of organ donors in the UK, with only 1 in 3 people on the donor register. Right now there are around 250 people waiting for a new heart and most of these people will have cardiomyopathy.
4 in 10 cardiomyopathies are genetic
26th January 2018
4 in 10 cardiomyopathies are genetic, according to a European Society of Cardiology (ESC) study published today in European Heart Journal.
Former England rugby player supporting Cardiomyopathy UK
23rd January 2018
Lee Mears, former Bath and England rugby player is supporting Cardiomyopathy UK with our recent #MyHeartStory campaign and encouraging families to talk about their heart history.
Mumsnet supports our #MyHeartStory campaign
11th January 2018
Mumsnet - the UK's largest parenting website has supported and shared our #MyHeartStory campaign this January.
Women more likely to die after heart attack
8th January 2018
Fewer women in the UK would die from heart attacks if given the same treatments as men
Heart transplant waiting list up by 24%
4th January 2018
The number of people spending Christmas on the heart transplant waiting list is 24% higher than it was last Christmas.
Cardiomyopathy UK and Alexander Jansons Foundation join forces
19th December 2017
From 2018 we will be able to do more to support people affected by myocarditis.
Waiting lists for heart transplants have trebled
4th December 2017
New figures from the NHS Blood and Transplant service show the number of people on the waiting list for a new heart in the UK has increased by 162% since 2008
New Support Group in Sussex
23rd November 2017
We are launching a new support group in Sussex this week.
