Latest news

Category: Campaigns

Can you help with genome editing project?

10th November 2016

Volunteers needed to contribute to four London workshops on the issue.

Big increase in public defibrillators saves many more lives

7th November 2016

Initiative in Japan shows, say researchers.

Richard raises awareness with medical students and junior doctors

3rd November 2016

He tells his cardiomyopathy story to Student BMJ.

Give your views on genetic testing of unborn babies

28th October 2016

People with genetic conditions have chance to have their say.

Genetic testing can leave families uncertain

19th October 2016

Answers not as clear as we would like, say researchers.

Do you have a child or young person in your life who has cardiomyopathy?

11th October 2016

Having a child or young person with a diagnosis of cardiomyopathy can be a worrying or challenging time. If you have a child or young person with cardiomyopathy we'd like to hear from you.

Meeting the psychological needs of people with cardiomyopathy

10th October 2016

Today, is world mental health day and on Friday we'll be presenting the results of our emotional wellbeing survey at a round-table discussion to identify how best to meet the psychological needs of people with cardiomyopathy.

Latest edition of My Life just out

7th October 2016

In this issue of our magazine we focus on children with cardiomyopathy.

NICE starts consultation on organ donation guidelines

3rd October 2016

Consultation starts today.