Latest news

Category: Campaigns

Give your views on genetic testing of unborn babies

28th October 2016

People with genetic conditions have chance to have their say.

Genetic testing can leave families uncertain

19th October 2016

Answers not as clear as we would like, say researchers.

Do you have a child or young person in your life who has cardiomyopathy?

11th October 2016

Having a child or young person with a diagnosis of cardiomyopathy can be a worrying or challenging time. If you have a child or young person with cardiomyopathy we'd like to hear from you.

Meeting the psychological needs of people with cardiomyopathy

10th October 2016

Today, is world mental health day and on Friday we'll be presenting the results of our emotional wellbeing survey at a round-table discussion to identify how best to meet the psychological needs of people with cardiomyopathy.

Latest edition of My Life just out

7th October 2016

In this issue of our magazine we focus on children with cardiomyopathy.

NICE starts consultation on organ donation guidelines

3rd October 2016

Consultation starts today.

Doctors and patients should share more decision-making

27th September 2016

It improves the quality of the decisions and patient satisfaction, says NICE.

Four types of cardiomyopathy being investigated in 100,000 Genomes Project

23rd September 2016

Eligible patients can nominate themselves.

Ten recommendations to improve heart failure care

22nd September 2016

Report by All Party Parliamentary Group on Heart Failure.