Latest news

Changes to the Organ Donation Register in England

22nd February 2018

There is real shortage of organ donors in the UK, with only 1 in 3 people on the donor register. Right now there are around 250 people waiting for a new heart and most of these people will have cardiomyopathy.

4 in 10 cardiomyopathies are genetic

26th January 2018

4 in 10 cardiomyopathies are genetic, according to a European Society of Cardiology (ESC) study published today in European Heart Journal.

Former England rugby player supporting Cardiomyopathy UK

23rd January 2018

Lee Mears, former Bath and England rugby player is supporting Cardiomyopathy UK with our recent #MyHeartStory campaign and encouraging families to talk about their heart history.

Researcher looking for newly diagnosed experiences of cardiomyopathy

18th January 2018

PHD Researcher Jennifer Rees is looking for newly diagnosed experiences of cardiomyopathy and wants to hear from you!

Mumsnet supports our #MyHeartStory campaign

11th January 2018

Mumsnet - the UK's largest parenting website has supported and shared our #MyHeartStory campaign this January.

Women more likely to die after heart attack

8th January 2018

Fewer women in the UK would die from heart attacks if given the same treatments as men

Heart transplant waiting list up by 24%

4th January 2018

The number of people spending Christmas on the heart transplant waiting list is 24% higher than it was last Christmas.

Cardiomyopathy UK and Alexander Jansons Foundation join forces

19th December 2017

From 2018 we will be able to do more to support people affected by myocarditis.

Our opening hours this festive season

13th December 2017

Find out what hours our helpline nurses will be open this festive season.

Waiting lists for heart transplants have trebled

4th December 2017

New figures from the NHS Blood and Transplant service show the number of people on the waiting list for a new heart in the UK has increased by 162% since 2008