Record numbers attend our London information day

28th September 2015

Around 170 people attended our cardiomyopathy information day and AGM in London on Saturday.

The record numbers, at the Holiday Inn Regent's Park, listed to talks from cardiomyopathy experts and in a group session (pictured below) had their say on improvements in care they would like to see provided by the NHS and extra services that could be provided by Cardiomyopathy UK.

Comments from those who attended include:

"I would like to thank everyone involved in the wonderful day. I came away feeling that Cardiomyopathy UK is becoming a very useful weapon in the armoury against our collective and individual fights against this disease. I feel empowered and motivated."

and

"My first time and I found the day informative and reassuring. It was good to talk to people with the same heart condition as me. Will definitely go again."

Professor Perry Elliott, from the inherited heart disease team at Barts Heart Centre and vice president of Cardiomyopathy UK, discussed current developments in cardiomyopathy, including the benefits to be gained from having genetic testing and new developments in pacemaker technology.

The charity's medical director Robert Hall talked about how we are doing more to help educate medical professionals about the disease - including regional cardiomyopathy conferences and our online videos for GPs - and how affected families can help us to promote the charity's work and its medical events.

In the afternoon there were separate sessions for those with dilated cardiomyopathy (DCM),  hypertrophic cardiomyopathy (HCM) and arrhythmogenic right ventricular cardiomyopathy (ARVC).

Professor Elliott led the DCM group,  Dr Gerry Carr-White from St Thomas's Hospital, London, the HCM group, and Dr Antonis Pantazis, from the Barts Heart Centre, the ARVC group.

Counsellor and counsellor trainer Carol Smith held a sessions for the partners of people with cardiomyopathy.

The day finished with an ask the experts sessions.

At the AGM in the morning, the charity's chairman Peter McBride stood down after 12 years at the helm and Alison Fielding was appointed the new chairman.