Are you taking part in the 100,000 Genomes Project?

1st December 2015

Are you taking part in the 100,000 Genomes Project, a big Government project to find out more about genetic diseases to help improve treatments?

Then researchers at Oxford University would like to hear from you.

In the genomes project, thousands of families affected by inherited diseases, such as cardiomyopathy, are having all their genes mapped to improve understanding of the diseases and ultimately help towards finding better treatments.  The genome project is only for families who do not know the gene mutation affecting them.

But now in a separate initiative, researchers want to hear from people about what it’s like to take part in the genomes project and those who have declined a request to take part.

Researcher Melissa Stepney said: “We would like to interview families who have been involved in the 100,000 Genomes Project about their experiences, feelings and thoughts about genomic research.

“We would then (with their permission) put extracts from their interviews on our website www.healthtalk.org  (in video, audio or written only format).

“If you are interested and would like further information or have any questions about the interviews, please get in touch with me or my colleague Sara Ryan.

For more about the genomes project, see here.

 

 

For more about the project, see here http://www.cardiomyopathy.org/news--media/latest-news/post/119-more-families-get-all-their-genes-mapped