Families taking part in 100,000 Genomes Project sought for participants' panel

29th January 2016

Families taking part in a national genetic research project are being sought to join a special panel.

The 100,000 Genomes Project is mapping all the genes of thousands of families affected by inherited diseases, such as cardiomyopathy, and cancer.  It is hoped the research will lead to better understanding of the diseases and improved treatments.

Now Genomics England, which is running the genomes project, is looking for people taking part in the project or their carers to join a participants' panel.

“The role of the panel is to ensure that the interests of participants are always at the centre of the project,” said a spokesman for Genomics England. “The panel will make sure that the experiences of participants are improved, respond to feedback and oversee who should have access to the data.”

The panel is due to meet twice a year in London.  Those who cannot attend in person will be able to take part on the telephone or via Skype. Those joining the panel will be paid for their time and expenses will be covered.

For more details see the flyer or the Genomics England website