Latest edition of My Life out now

14th July 2016

Our latest edition of My Life, our regular magazine for people affected by cardiomyopathy, is now available.

The issue contains medical articles, patient stories, news about developments in care and latest research.

This issue focusses on working with cardiomyopathy and some of the problems that people with the disease can encounter.

It includes personal stories from Anne-Marie Cole, who was determined to become a children’s nurse despite warnings the job might prove too strenuous for her, and Karen Flavell, who managed to work around her heart transplant.

Cardiomyopathy UK support nurse Robert Hall discusses getting back to work after a spell of ill health and lawyer and Cardiomyopathy UK trustee Ivor Adair talks about working rights for people with the disease.

Robert also finalises his series of articles on heart rhythm problems, this time on ventricular tachycardia, and genetic counsellor Judith Edhouse, from Leeds Teaching Hospitals NHS Trust, discusses genetic testing and cardiomyopathy.

There are more details about our new children’s nurse Sarah Regan and how she will be supporting our families with children.  Also for our affected families, there are more details about our national conference on cardiomyopathy on Saturday, 12 November in London.

As always, Professor Perry Elliott, from the inherited heart disease team at the Barts Heart Centre in London, answers your medical questions.

News stories include ones about a research project looking at the effects of drug withdrawal in patients whose heart function has recovered, and the new NICE standard for the treatment of chronic (long standing) heart failure. There are also details about some of our fundraisers’ activities and what you can do to help us support families affected by cardiomyopathy.

See our My Life section