Latest edition of My Life just out

7th October 2016

The latest edition of My Life, our regular magazine for people affected by cardiomyopathy, focusses on children with cardiomyopathy.

The issue contains medical articles, children’s cardiomyopathy stories, and news about developments in care and latest research.

Eighteen-year-old Ade Ashaye, who was diagnosed with hypertrophic cardiomyopathy as a baby, talks about growing up with the disease and parents Adrian Livingstone and Sarah Bishop write about their young children’s experiences of having the disease.

Our children’s support nurse Sarah Regan gives advice on coping with a diagnosis of cardiomyopathy in a child. Our new youth and peer support manager Jo Franks talks about our plans to develop our services for young people and how we want young people to get involved and help us do this.

There is also more information on our national cardiomyopathy conference in London in November and our new cardiomyopathy support group in Surrey which meets for the first time on Saturday, 15 October.

As always, Professor Perry Elliott, from the inherited heart disease team at the Barts Heart Centre in London, answers your medical questions.

News stories include research into children’s cardiomyopathy, drugs that can worsen heart failure, what increases a person’s risk of getting takosubo cardiomyopathy, and trials for drugs to help treat heart contraction problems in both hypertrophic and dilated cardiomyopathy.

There are also details about some of our fundraisers’ activities and what you can do to help us support families affected by cardiomyopathy.

See our My Life section