Meeting the psychological needs of people with cardiomyopathy

10th October 2016

World mental health day is this week and on Friday we'll be presenting the results of our emotional wellbeing survey at a round-table discussion to identify how best to meet the psychological needs of people with cardiomyopathy.

Thank you to everyone who took part in August's survey, on the emotional impact of being diagnosed with cardiomyopathy. Your input helps us drive change in the areas most needed. For example; many of you told us that support for your emotional wellbeing and psychological needs is lacking, and that appropriate support and interventions would lead to a significant improvement in your ability to manage your condition and cope with day-to-day life. 

Friday's event will bring together professionals with expertise in cardiomyopathy and mental health to work with us and patient representatives to discuss these issues, share best practice and identify potential for development of services. This is all part of our ongoing goal to improve the lives of people affected by cardiomyopathy. 

We'll be sending out another survey this week about children and young people and would once again appreciate your input.

There will also be a number of workshop sessions at our Cardiomyopathy UK national conference in November dealing with mental health:- 

  • Coping with the emotional impact of cardiomyopathy - for people with the condition - Dr Ian McPherson & Tina Amiss
  • Coping with the emotional impact of cardiomyopathy on you - for family and carers - Melissa Sanchez & Julie Rees
  • Supporting a young person with cardiomyopathy - Sarah Regan & Ufuoma Ashaye
  • Self-management and goal setting - Dr Graeme Gillespie & Jenny Rees
  • Taking control of your care and treatment - tbc