Can you help with genome editing project?

10th November 2016

People affected by genetic conditions, such as cardiomyopathy, are being sought to take part in four workshops on genome editing.

Genome editing allows scientists to alter people’s genetic code, by removing, replacing, or adding to parts of the DNA sequence. It is hoped the technique will provide many new treatments and cures for genetic diseases in the decades ahead.

The Genetic Alliance UK, an alliance of charities including Cardiomyopathy UK, is holding the workshops next year.  They will focus on different topics relating to genome editing and volunteers will need to pledge to attend all four.

A spokesman for the charity said: “It is important that patients, and the wider public, have access to up-to-date information on these techniques.

"We want to make sure that the language used by researchers, clinicians and the media is clear and easy to understand for patients. To achieve this, we need your help.”

The workshops, all in central London, will explore the language, messages and implications of genome editing. One will visit a research institute. They are likely to take place on Saturday afternoons in January, March and May.

With the Progress Educational Trust, the charity will develop resources to include patients’ views on the best ways to communicate about genome editing.

It is hoped the resources will prove useful to all those talking to patients about this topic. This project is being funded by Wellcome.

Food and refreshments will be provided and reasonable expenses covered.

To register your interest see here

For further information. email Mariana Campos or call her on 020 7704 3141.