Find out more about cardiomyopathy at our information day in London

20th July 2015

Families affected by cardiomyopathy are invited to attend our information day in London on Saturday, 26 September.

The day is put on by Cardiomyopathy UK to help people find out more about cardiomyopathy and advances in care, and to meet others who are affected.   People who come to our information days tell us they find them very helpful and encouraging.

The information day, led by experts in cardiomyopathy care, includes dedicated sessions on each of the main types of cardiomyopathy – dilated, hypertrophic and arrhythmogenic right ventricular cardiomyopathy.

Professor Perry Elliott, from the inherited heart disease team at Barts Heart Centre, will be leading the dilated cardiomyopathy session. Dr Gerry Carr-White, consultant cardiologist and clinical lead for cardiology, heart failure and inherited cardiac diseases at Guy’s and St Thomas’ NHS Foundation Trust will be taking the hypertrophic cardiomyopathy session, and Dr Antonis Pantazis, a consultant cardiologist also from Barts Heart Centre, will be leading the arrhythmogenic right ventricular cardiomyopathy.

People affected by cardiomyopathy, their family members and friends are welcome. Counsellor and trainer Carol Smith will be holding a session for the partners of affected people.

Attendance is free, but those who wish to join us for lunch are asked to pay £10 each towards the cost.

The day, at the Holiday Inn Regent’s Park, Carburton Street, London W1W, will start with the charity’s AGM at 10am followed by a discussion on what extra services Cardiomyopathy UK or the NHS could provide to support people affected by cardiomyopathy.

The information part of the day starts at 12.25pm with a talk by Professor Elliott on current developments in cardiomyopathy.   Our medical director Robert Hall will then discuss the importance of educating the medical profession about cardiomyopathy, how Cardiomyopathy UK does this and how affected families can help.

The group sessions start after lunch at 2.30pm and this is followed by an ask the experts question and answer session.

For more information and to book a place at the day, see here.

To find out what people say about our information days, see here.