Support group promotes us at the British Transplant Games

18th August 2015

A cardiomyopathy support group has been supporting one of its members taking part in the British Transplant Games and promoting the charity.

Members of the North East of England Cardiomyopathy Support Group ran a stall at the Newcastle-Gateshead games and cheered on support group member Jon Comb who was taking part.

Jon had a heart transplant two years ago because of his cardiomyopathy.

Cardiomyopathy support group

Cathy Stark and Susan Saunders, who run the support group, said: “We saw Jon take his incredible journey from sickness, to having a heart transplant, getting back to good health and taking part in the games.”

So the group wanted to be represented there to promote Cardiomyopathy UK and support Jon’s endeavours.

He took part in five events, narrowly missing out on a bronze medal in the archery.

Cardiomyopathy is one of the main reasons people have a heart transplant.

While on the stall, supporters talked to many people whose lives had been touched by transplantation, including the mother of a six-year-old girl who had been diagnosed with cardiomyopathy at birth and had a transplant at two.

Her mother said that the charity’s Cardiomyopathy in Children and Young People booklet had been very useful before her daughter’s transplant, but thankfully they no longer needed it.

Cathy and Susan added: “For Jon and the other participants who had received life-changing transplants it was all about the taking part and the games proved to be an inspirational and moving event for all involved. The games also acknowledged the generosity of donor families whose loss gave the gift of life to so many."

They said that another member of the support group is now waiting for a transplant.

“Having been at the games, we all better understand that a heart transplant is not the end of the cardiomyopathy story but the beginning of a new journey - and we wish him - and all those on the transplant list - well on their journey,” they said.

Pictured above (from the left are Hazel, Susan, Cathy and Len and (below) all the volunteers who helped on the stand.

Support group volunteers

The stall also raised £50 for Cardiomyopathy UK. For more details about the support group, see here.