About our 'Every Heart Matters' Campaign

Flu season presents a triple threat for cardiomyopathy and myocarditis.

Our campaign

Our 2019 ‘Every Heart Matters’ campaign aims to encourage people to seek help if they have persistent flu or flu-like symptoms, breathlessness, chest pain, palpitations, swollen ankles or dizziness. We also want GP’s to check that flu like symptoms are not masking a more serious problem.

Flu season is an especially concerning time because it presents a triple threat:

  • Flu can lead to myocarditis that, if left untreated, can develop into cardiomyopathy
  • It can mask the symptoms of these conditions and make them harder to diagnose
  • People are less likely to seek help, or go back to the doctor, if they still feel unwell

Our survey findings

Earlier this year, we surveyed over 2,000 people and found that people are more than twice as likely to go to their GP with flu or cardiac symptoms in the summer as during flu season. If they feel unwell during flu season, they think serious symptoms it is just a bug “going around” and will clear up on their own.

Our research also found that 95% of people are unaware persistent flu-like symptoms can be signs of the conditions, cardiomyopathy and myocarditis. Lack of awareness means the majority of people would not visit the GP with lingering flu-like symptoms. The new data reveals this issue is paramount during winter, when people with lingering flu-like symptoms are 59% less likely to visit the GP, compared to the summer.

We also spoke to leading clinicians who shared our concern about the challenges that flu season present for the detection of cardiomyopathy and myocarditis. They will also be helping us to spread the word to healthcare professionals.

As part of this campaign, people with myocarditis who were originally told they had the flu will be sharing their stories with the media and we will be using social media to help make sure that we spread awareness to a wide an audience as possible.

Jamie's story

Hear one of our support stories discuss his diagnosis of myocarditis and how he manages his condition. You can also read his story here.

How to get involved

We would love for our supporters to carry on the conversation and share your own stories using the hashtag #EveryHeartMatters.

Campaign supporter stories

What is myocarditis?