Work for us

We have a huge job to do. We want all people affected by cardiomyopathy to live a full life.

To do this we need to grow and develop Cardiomyopathy UK  and from time to time this means adding to our small staff team. Whatever the role, we want people who;

  • are passionate about changing the lives of people affected by cardiomyopathy;
  • really understand the condition and the impact it has;
  • know more than we do already; and
  • are happy to get stuck in.


Youth Support Manager

As the UK’s only charity dedicated to supporting people affected by cardiomyopathy we are committed to improving the lives and well-being of everyone affected by the condition. We know that for many children and young people maturing with heart muscle disease brings a set of unique challenges that can affect their physical and emotional well-being. That’s is why we are looking for someone who can empathise with our younger client group and work with them to support and empower all children and young people affected by cardiomyopathy to live their best life. You will be a dynamic and warm individual who can identify the needs of our younger community and work with children, young people and critical stakeholders to reduce social isolation, improve emotional health and support good physical well-being. This post is funded by the generosity of Max’s Foundation.

Salary:  £12,800 (FT equivalent £32,000)

Days:    2 days per week with occasional weekend work

Reporting to:   Head of Services

Based:     Office / home (one day per month will be based at the Cardiomyopathy UK office in                                   Chesham, Bucks)

Job Description and person specification

Please apply online via the charity job website providing a cover letter (no more than two pages ) and an up to date C.V

Challenge Events Fundraiser (Maternity Cover)

We are really proud of our #teamcardio, a dedicated and passionate group of people from across the country raising funds for the charity many through challenge events and oversees adventures. This group is responsible for raising a large part of the charity's income and you will be responsible for keeping them happy, motivated and on track.

As our Challenge Events Fundraiser (Maternity Cover), you will get to work as part of the a small and flexible fundraising team supporting our volunteer fundraisers, helping to increase funds from corporate partners as well as shaping the challenge events programme and developing new income generating ideas. 

We are looking for someone who can motivate others and build relationships, think analytically and be entrepreneurial and have the drive and energy to keep #teamcardio growing.    

Please note that this role is offered as Maternity Cover with a temporary contract of approx. 9 Months 

Please apply online via the charity job website providing a cover letter (no more than two pages ) and an up to date C.V

Trustee positions

Cardiomyopathy UK is a specialist charity providing information and support to people affected by heart muscle disease, facilitating research, training clinicians and representing the needs of people with the condition and their families. We are looking to appoint new trustees with a view to expanding our skills and developing the future officers of the charity (Chair, Vice Chair etc.) The skills we particularly need are those of fundraising, digital leadership, HR  and those needed for the strategic leadership of the charity.

In this recruitment round, we are particularly keen to appoint people with the skills to represent the needs of people from black and minority communities. Most of our trustees have cardiomyopathy or myocarditis or are family members but we are open to applications from health care professionals or people otherwise committed to our mission.

Meetings are held 5/6 times a year in London and travel  expenses are available. Training will be provided. The time commitment also includes taking leadership on a particular area and those looking to become an officer will have an opportunity to shadow current post holders.

We also have a Children’s and Young People’s panel for 14-25 year olds and 16- 25’s are welcome to apply for either the main board or ask about joining the panel.

Please contact for an information pack. Informal chats with the Chair prior to application can also be arranged.

Useful information about our work:



Fundraising Admin Volunteer

About this role

The role of the Fundraising admin volunteer is to assist the charity with its day to day fundraising administrative work. This will involve entering data onto our database, making up fundraising packs, sending out standard letters and using the internet to search for information about corporate and trust opportunities. We are looking for someone with good administration skills, who is able to work as part of team.

Hours – 6-8 hours per week on a Monday and/or Wednesday

Location – based at our office in Chesham

Typical tasks include

  • Data entry
  • Internet research
  • Making up packs
  • Sending our standard letters

What we are looking for;



  • Good communication skills
  • Experience of working in an office
  • Good written and IT skills
  • Experience of the third sector
  • Excellent telephone skills


  • Attention to detail


  • Good people skills


Training requirements

‘On the job’ support will be provided by the Challenge Event Fundraiser, Community Fundraiser, Fundraising Assistant and Head of Fundraising as relevant to the task.  

How to apply

Please contact Sheila Nardone at if you are interested in volunteering.