Work for us

We have a huge job to do. We want all people affected by cardiomyopathy to live a full life.

To do this we need to grow and develop Cardiomyopathy UK  and from time to time this means adding to our small staff team. Whatever the role, we want people who;

  • are passionate about changing the lives of people affected by cardiomyopathy;
  • really understand the condition and the impact it has;
  • know more than we do already; and
  • are happy to get stuck in.

Policy & Advocacy Manager

Cardiomyopathy UK is the national charity for people affected by the heart muscle diseases cardiomyopathy and myocarditis. The charity provides a range of support and information services, works to raise awareness of the condition and campaigns to improve access to quality treatment.

At the end of 2019 the charity was able to secure funding to expand on its regional and national advocacy work and build networks of volunteers, clinicians and other stakeholders to identify where support and treatment can be improved, deliver local improvement and help shape the charity’s policy across the four UK nations.

We are now looking for the right individual to lead this important work. You will be able to bring a solid understanding of NHS service delivery, commissioning and how patients can influence care and treatment. This role will involve working with a wide range of stakeholders across the UK as well as recruiting, motivating and managing a team of volunteers so you will need to be a persuasive and credible communicator.

For an informal discussion about this role please contact CEO Joel Rose on 01494 791224

To apply please send your C.V and cover letter (no more than two pages of A4) to by 5pm on Monday 27th April 

Job description and person specification


Fundraising Admin Volunteer

About this role

The role of the Fundraising admin volunteer is to assist the charity with its day to day fundraising administrative work. This will involve entering data onto our database, making up fundraising packs, sending out standard letters and using the internet to search for information about corporate and trust opportunities. We are looking for someone with good administration skills, who is able to work as part of team.

Hours – 6-8 hours per week on a Monday and/or Wednesday

Location – based at our office in Chesham

Typical tasks include

  • Data entry
  • Internet research
  • Making up packs
  • Sending our standard letters

What we are looking for;



  • Good communication skills
  • Experience of working in an office
  • Good written and IT skills
  • Experience of the third sector
  • Excellent telephone skills


  • Attention to detail


  • Good people skills


Training requirements

‘On the job’ support will be provided by the Challenge Event Fundraiser, Community Fundraiser, Fundraising Assistant and Head of Fundraising as relevant to the task.  

How to apply

Please contact Sheila Nardone at if you are interested in volunteering.