Christmas Appeal - Steffi's Story

Please help us this Christmas to be there for families that need us.


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Christmas can be a particularly difficult time for families like Steffi's.

When you’re an active teenager, suddenly getting a diagnosis of cardiomyopathy is a very frightening experience and it impacts on the whole family.

Giving a gift this Christmas will enable us to support families like Steffi’s to better understand their condition and access the medical advice and emotional support that the whole family needs at such a scary time.  

‘’Cardiomyopathy is one of those things that you have to get through as a family, with help from Cardiomyopathy UK. As a family, we went to the local support group and I got in contact with other young people with the condition. It was horrible at the time, but five years on, look where we are now. We’re all happy and healthy and that’s all that matters" - Steffi.

‘‘We were lucky to find Cardiomyopathy UK as we found the correct information about the condition and now as a family we are much more aware about it’’ - Elayne, Steffi’s mum.

"[When I was sixteen] we were waiting in the family room at the hospital when my sister was being diagnosed. I knew straight away something wasn’t quite right. I told myself to be brave and be the man of the family. Now we are getting on with the condition in normal life. Her heart condition doesn’t stop her having a laugh with me. She’s sometimes got more energy than me which is annoying, but she’s still my sister, I love her!" - Chris, Steffi's brother.

Your gift will make a real difference to families affected.

Thank you.