Family and relationships

Being diagnosed with cardiomyopathy can be life changing and you may be experiencing a formidable range of emotions. These can include isolation, loss of control over your life, guilt and uncertainty about your role in the family.

It is not always easy to raise the subject of cardiomyopathy; some of the information can be difficult to explain, particularly if it is new to you. But there are many benefits to telling your family and friends that you have cardiomyopathy.

They can offer you comfort and support if you need it, and will understand any limitations that you may have. They can also share your concerns and help you to manage and to adjust, and live well with the condition.


You may be worrying who else in the family has the disease or will develop it. Guilt is common in those who discover a loved one has the condition too.

It is important to remember that screening helps with earlier diagnosis, which can be very beneficial. And knowing the disease is in the family can prompt relatives to contact a doctor quickly if they experience any symptoms. 

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Discussing your cardiomyopathy with friends and family can be a great source of comfort and support, particularly during times of stress or anxiety, says cardiomyopathy nurse specialist Simon Waller

"It is natural to struggle with the idea of telling your child that he or she has cardiomyopathy. Parents want to protect their children from harm, so telling a child that he or she is unwell can be particularly distressing" - Clinical psychologist Dr Kate Hawkins discusses telling children that they have cardiomyopathy

Clinical psychologist Dr Sara O'Curry, from Great Ormond Street Hospital, talks about telling children about your cardiomyopathy