Talk to us

We're here to help, with our specialist nurse helpline and our expert information resources. You can give us a call on our freephone helpline, connect over the internet via our Live Chat service, email our nurse, or speak to someone who has been through a similar experience.

Whatever help and support you need, we're here to help for as long as you need us.

Our helpline : 0800 018 1024

Call our helpline on 0800 018 1024 and we'll put you in touch with one of our expert cardiomyopathy support nurses. The helpline number is free from UK landlines but you will be charged if you call from a mobile.

Medical and healthcare questions

Between them our nurses have an incredible 84 years in nursing, and are here to answer your questions Monday to Friday, 8:30 am to 4:30pm.

You can also email our support nurses at supportnurse@cardiomyopathy.org

Our nurses are also sometimes present on our closed Facebook group.

Workplace, benefits and employment questions

Our Head of Services Ali Thompson is specially trained to answer any questions you may have about your employment, benefits entitlements and about your work environment. You can contact her on our helpline as per above, or email her at alison.thompson@cardiomyopathy.org

 


Live Chat

Our nurses are also often available to talk online via our Live Chat system. Simply go to our homepage and if our nurse is available there should be a device on the bottom right hand corner of your screen saying chat now.

Live Chat is normally available Monday-Friday between 8.30am and 4.30pm.

Live Chat is an instant messaging service that means you can chat in real time with our support nurses and virtual adviser. You can use Live Chat to ask questions, get advice and find information about your health, welfare and rights as well as information about Cardiomyopathy UK.

How do I use Live Chat?

When you see the image to the left appear at the bottom of our website it means that one of our support nurses is available to chat online and can answer your questions about your condition. You click the image and then begin typing your question. The nurse will be alerted to your message, and will welcome you and respond.

When you see the following image appear at the bottom of our website it means that our virtual adviser is available to chat online and can answer your questions about welfare, benefits and your rights. You click the image and then begin typing your question. The virtual adviser will be alerted to your message, and will welcome you and respond.

Why use Live Chat?

Live Chat is great if you are in a place where you cannot talk (such as at work) because you can simply click the chat button to start a conversation with a support nurse or virtual adviser. If you want a quick response to a question or don't feel like speaking on the phone them using Live Chat is ideal.


Peer support volunteers

We understand that sometimes people don’t want to talk to a nurse or a benefits adviser, they want to talk to someone who has the condition and knows what it can be like to live with cardiomyopathy. For this reason we have a number of trained peer support volunteers who can call or email you to help you better understand and manage your condition.

Our peer support volunteers have different types of cardiomyopathy, and some don’t have the condition themselves but support someone who does so they are able to talk with carers. Our youngest volunteer is seventeen years old and we have male and female responders. The two most common requests for a peer support volunteer are because the caller is having a device like an ICD fitted or they have been recently diagnosed - in both cases we can connect you with someone to speak to who has been through a similar experience.

Sometimes people might not know anyone else with cardiomyopathy so talking to someone else with the condition can help reduce feelings of isolation and being “the only one”. Where possible we try to match the caller with a volunteer of the same gender and age to promote better understanding.

How it works

If you want to talk to a peer support volunteer please contact our helpline on 0800 018 1024 and ask for our Head of Services Ali who will take some basic details in order to match you with most appropriate peer support volunteer