Latest news

Category: Campaigns

2019 National Conference round-up

21st November 2019

On 9 November 2019 we held our annual National Conference in London, which included attendees, speakers, staff and supporters to discuss all things related to cardiomyopathy. Read our round up of the conference here. 
 

New research reveals lack of 'heart' knowledge during flu season

20th November 2019

Our new research reveals a concerning lack of knowledge that persistent flu-like symptoms can be signs of serious heart conditions, cardiomyopathy and myocarditis.

Living with heart failure

30th September 2019

Receiving a diagnosis of heart failure can be difficult, so we have put together some tips for living with heart failure. Read our full advice here.

Hospital pioneers robotic surgery milestone

28th August 2019

A man from Wales has become one of the first people in the UK to undergo robotic heart surgery at Liverpool Heart and Chest Hospital. This new type of surgery will allow more patients requiring specialist cardiothoracic treatment to benefit from cutting-edge surgery. Read the full story here.

Meditation amongst heart failure patients

12th August 2019

A recent study reveals the potential benefits of meditation in people who have been diagnosed with heart failure. Read the study findings here.

How satisfied have you been with your care?

5th August 2019

In our latest edition of My Life magazine, Jenny Taylor discusses her ongoing research into the impact a diagnosis of cardiomyopathy has on patients, carers and family members. Read the full article here.

Survey highlights problems in the care pathway

9th July 2019

Our latest survey shows that people with cardiomyopathy and myocarditis are being left at risk due to inefficient 'care pathways' – the journey from diagnosis to treatment. Read on to find out more.

The Heart Hive research project crowdfunder has launched

15th May 2019

We have been working with researchers at Imperial College London to create The Heart Hive, a research project that will give a massive boost to research for cardiomyopathy and myocarditis. Read on to find out more about how you can get involved. 

'My mother... she always knew how to start something'

9th May 2019

We are celebrating our 30th anniversary by dedicating our May edition of My Life to the past 30 years. Frustrated by the lack of information and support available to those affected by cardiomyopathy, Carolyn Biro launched Cardiomyopathy UK (first called the Hypertrophic Cardiomyopathy Association) three decades ago. Read on to find out more. 

Why there's a buzz around Heart Hive research project

28th January 2019

2019 is set to be an exciting year for cardiomyopathy and myocarditis patients keen to get involved in cutting-edge research. Read about the ground-breaking Heart Hive project here.