Latest news

Category: Campaigns

Latest edition of My Life just out

7th October 2016

In this issue of our magazine we focus on children with cardiomyopathy.

NICE starts consultation on organ donation guidelines

3rd October 2016

Consultation starts today.

Doctors and patients should share more decision-making

27th September 2016

It improves the quality of the decisions and patient satisfaction, says NICE.

Four types of cardiomyopathy being investigated in 100,000 Genomes Project

23rd September 2016

Eligible patients can nominate themselves.

Ten recommendations to improve heart failure care

22nd September 2016

Report by All Party Parliamentary Group on Heart Failure.

Launch of the report from the All Party Parliamentary Group on Heart Failure

14th September 2016

We were at parliament yesterday for the launch of the report from the All Party Parliamentary group (APPG) on Heart Failure.

Jenny's PhD studies to focus on the impact of cardiomyopathy on patients and their families

8th September 2016

Support volunteer Jenny Rees will be working for three years with Liverpool John Moores University

Myocarditis patient and relatives information evening

5th September 2016

Royal Brompton Hospital is hosting a myocarditis information day on Wednesday 14 September.

Science festival looks at genetics

25th August 2016

Free talks at four day event in Swansea in September.