Latest news

A marathon challenge for Leon

25th April 2018

Leon Lima took on the London Marathon for us in an incredible 3 hours and 11 minutes, in honour of his son Luka, who has dilated cardiomyopathy. Read his story here.

Lucy runs the London Marathon for her dad

23rd April 2018

Lucy took on the iconic London Marathon for us in memory of her dad Mark. Read her story here.

The latest issue of My Life is out now

23rd April 2018

Our latest issue of our My Life magazine is out now!

Campaigning in 2018

17th April 2018

Find out more about our latest campaign and how sharing your experiences will help inform what we do.

Preventing sudden death in hypertrophic cardiomyopathy

29th March 2018

A new worldwide study has validated the ESC recommendations of predicting and preventing sudden cardiac death in patients with hypertrophic cardiomyopathy (HCM).

Wearable cardioverter defibrillator does not reduce sudden death mortality

15th March 2018

Trials of the Vest Prevention of Early Sudden Death Trial (VEST) found that the device reduced the overall risk of early death for heart attack survivors – but not the risk of sudden cardiac death.

Supporting Warwick’s hearts with charity information day

13th March 2018

Our Warwick information day receives local support and recognition to encourage more people to attend the day

Changes to the Organ Donation Register in England on the way

22nd February 2018

There is real shortage of organ donors in the UK, with only 1 in 3 people on the donor register. Right now there are around 250 people waiting for a new heart and most of these people will have cardiomyopathy.

4 in 10 cardiomyopathies are genetic

26th January 2018

4 in 10 cardiomyopathies are genetic, according to a European Society of Cardiology (ESC) study published today in European Heart Journal.

Former England rugby player supporting Cardiomyopathy UK

23rd January 2018

Lee Mears, former Bath and England rugby player is supporting Cardiomyopathy UK with our recent #MyHeartStory campaign and encouraging families to talk about their heart history.