Latest news

How 30 years of medical progress has helped our understanding

28th July 2019

Dr Antonis Pantazis and Samantha Mason discuss the past 30 years of medical process and what the future holds for research and treatment into heart muscle diseases. This article was taken from our May edition of My Life.

Coping with hot weather

26th July 2019

As the Met Office issues a yellow health warning for heatwave conditions our specialist nurse Jayne Partridge offers advice on coping with the heat.

Survey highlights problems in the care pathway

9th July 2019

Our latest survey shows that people with cardiomyopathy and myocarditis are being left at risk due to inefficient 'care pathways' – the journey from diagnosis to treatment. Read on to find out more.

Launch of DrugStars partnership

6th June 2019

We are excited to be launching our new partnership with DrugStars! As you take your medicine, vitamins or pain killers, you earn stars which you can donate to Cardiomyopathy UK.

‘There was no internet when I was diagnosed’

19th May 2019

While waiting as a patient at St George's Hospital, London, Hugh Brazier stumbled upon a leaflet advertising the Cardiomyopathy Association, and decided to join. “For the first time I had a sense of not being alone...” Hugh recalls. Read his story in full here.

The Heart Hive research project crowdfunder has launched

15th May 2019

We have been working with researchers at Imperial College London to create The Heart Hive, a research project that will give a massive boost to research for cardiomyopathy and myocarditis. Read on to find out more about how you can get involved. 

'My mother... she always knew how to start something'

9th May 2019

We are celebrating our 30th anniversary by dedicating our May edition of My Life to the past 30 years. Frustrated by the lack of information and support available to those affected by cardiomyopathy, Carolyn Biro launched Cardiomyopathy UK (first called the Hypertrophic Cardiomyopathy Association) three decades ago. Read on to find out more. 

'My condition doesn't define me'

10th April 2019

Steffi Moore, 22, a member of the Cardiomyopathy UK young person’s CYP&YA Panel shares her story in the British Journal of Cardiac Nursing. Read the full article here. 

Call for new support groups

9th April 2019

The Cardiomyopathy UK local support group often provides people affected by cardiomyopathy and myocarditis their first opportunity to meet with other people similarly affected. We are currently looking to set up new support groups across the country. Read on for more information.

Pregabalin and Gabapentin – Reclassification of Class C Controlled Drugs

20th March 2019

From 1st April 2019, the drugs pregabalin and gabapentin will be reclassified as class C controlled drugs in the UK. It is important to be aware of how these changes will affect prescribing and dispensing processes. Read more here.