Latest news

Annual draw raises £10,000

31st August 2016

The draw for our summer raffle took place yesterday - here are the lucky winners!

Improved gene test analysis for cardiomyopathy

29th August 2016

could lead to better diagnosis

We're looking for Rapid Response volunteers

28th August 2016

We're looking for supporters who would like to become a rapid response volunteer - giving us your views on a large variety of topics.

Science festival looks at genetics

25th August 2016

Free talks at four day event in Swansea in September.

New Surrey support group

25th August 2016

We're delighted to announce the start-up of a new cardiomyopathy support group in Surrey.

Young person's event

24th August 2016

We'll be running a free event for young people alongside our National Conference this November.

Parliamentary enquiry into heart failure

22nd August 2016

The last pieces of evidence have now been collected for an enquiry into Heart Failure lead by the All Party Parliamentary Group (APPG) on Heart Disease.

 

Help improve understanding of genetic conditions

22nd August 2016

People with genetic conditions sought to help educate others.

Lack of diversity in genetic studies may lead to misdiagnosis

18th August 2016

say researchers looking at hypertrophic cardiomyopathy.

More families with cardiomyopathy can now benefit from special IVF treatment

16th August 2016

to help ensure their babies are not affected.