Cardiomyopathy UK and Alexander Jansons Foundation join forces

19th December 2017

In Summer 2017 we started to talk to the Alexander Jansons Foundation about how we could work together. The foundation is named after Alexander Jansons who died from myocarditis in July 2013 at the age of 18. Since its establishment, the foundation has focused on raising funds to support research into the condition, one that can lead to cardiomyopathy. The knowledge gained from the research that they have funded will add to the body of existing knowledge and increase our understanding of myocarditis and how it can be prevented and cured, therefore saving lives in the future. You can read more about myocarditis here.

From 2018 the Alexander Jansons Foundation will become part of Cardiomyopathy UK. We will take over the foundation’s research commitments and start to support people with myocarditis through our helpline, information resources and events. We will also be working to help raise awareness of the condition among the general public and among clinicians to improve diagnosis and treatment. At the same time, the foundation team will continue their highly successful fundraising efforts to support outstanding research.

We believe that by joining forces in this way we can expand the scope of our support services and play an important role in the development of myocarditis knowledge, diagnosis and treatment. We look forward to keeping you up to date with progress.