Call for new support groups

9th April 2019

The Cardiomyopathy UK local support group often provides people affected by cardiomyopathy and myocarditis their first opportunity to meet with other people similarly affected. Cardiomyopathy UK peer support services within the community help to reassure people with a diagnosis of cardiomyopathy or myocarditis, normalise aspects of the condition and foster mutual understanding. For the newly diagnosed and people experiencing difficulties with their condition, our support groups can provide hope, empathy and solutions to practical and emotional difficulties.

In 2018, seven new support groups were created to bring our total to 35 and 1,212 people attended a group during that time.  In total, 2,776 individuals benefitted from peer support provided by the charity in 2018. Peer support is recognised academically and practically to considerably improve a person’s emotional well-being, as the Mental Health Foundation has stated;

“The benefits of Peer Support are wide ranging for those receiving the support, peer-support workers themselves, and for the mental health system as a whole. One of the key benefits of Peer Support is the greater perceived empathy and respect that peer supporters are seen to have for the individuals they support. Peer Support also has benefits for peer support workers themselves, increasing levels of self-esteem, confidence and positive feelings that they are doing good. Peer-support workers often experience an increase in their own ability to cope.”

Over the past three years, the charity has significantly grown our network of support groups throughout the country, however, there remain areas which do not have a Cardiomyopathy UK support group and we need your help to change this. At present we don’t have support groups in the following areas:



Stoke on Trent




If you live in one of these areas and are interested in finding out more with regards to becoming a support group leader and what is involved please contact us on 01494 791 224 or email Ali our Head of Services at We are looking for two people per area who can commit to providing a minimum of four meetings a year. The charity will help you to source a venue, identify speakers and provide you with the practical and emotional support you need to run your group. Our support groups form part of our front line services and by volunteering to become a group leader you will be making a very real difference to the lives of others.