My condition doesn't define me

10th April 2019

Steffi Moore, 22, a member of the Cardiomyopathy UK young person’s CYP&YA Panel shares her story in the British Journal of Cardiac Nursing.

Steffi talks candidly about her life with HOCM (hypertrophic cardiomyopathy with obstruction) and how getting involved with Cardiomyopathy UK, volunteering for the CYP&YA Panel has improved her confidence and that she knows the charity is with her for every step of her journey.

In Steffi words, “after a lengthy 6 weeks of feeling sorry for myself and processing the emotional and physical impact of what I had been through and was going still going through, I decided not to live my life in fear and instead, to look at it as a second chance at life.”

Steffi is proof that although life can and will alter after a diagnosis of cardiomyopathy, it does not mean that you can’t live a fulfilling and productive life. Ali Thompson Head of Services for Cardiomyopathy UK has watched Steffi grow as a person and give support and hope to others. Ali said, “I have worked alongside Steffi with our CYP&YA Youth Panel and have seen her speak on the charity’s behalf at clinical events and I constantly inspired by this young woman. Steffi pulls no punches and tells it like it is! She is the embodiment of our services for young people.”

To read the full article, click here.