New Living with Cardiomyopathy booklet launched

23rd July 2015

Our new booklet about living with cardiomyopathy is now available.

The 92-page, full colour A5 publication, provides information about learning how to live with cardiomyopathy and getting on with your life.

The practical and free booklet covers diagnosis and care, looking after yourself, coping emotionally, involving family members and partners, carrying on with life and getting support from others.

Issues looked at include coping with tiredness and the side effects of drugs, sleeping, exercise, handling your feelings, living with a device, sex, pregnancy, working, driving and finances.

Contributors to the new guide include Cardiomyopathy UK’s cardiomyopathy support nurses, and inherited heart disease nurse specialists and clinical psychologists from University College London Hospitals NHS Foundation Trust.

Thanks also goes to our supporters who donated towards the cost of publication.

The new booklet is designed to complement our booklets on the different types of cardiomyopathy (hypertrophic cardiomyopathy, dilated cardiomyopathy and arrhythmogenic right ventricular cardiomyopathy) which we produce with the British Heart Foundation. These look at the diseases, management of them and treatments.

Cardiomyopathy UK medical director Robert Hall said: “We are very pleased to be able to offer the new Living with Cardiomyopathy booklet to people affected by cardiomyopathy and their families, and also to hospitals to give to patients.

“Our booklets about the different types of cardiomyopathy answer many of the medical questions people have when they are diagnosed with a cardiomyopathy. But we know people also have many questions about living with the condition, and we hope this booklet will help them with that.

“Of course our nurses are here too to help with any questions that affected families have.”

Download a copy, or order a copy here, email or call us on 01494 791224.