Three supporters help project to improve lives of people with heart failure

21st August 2015

Three Cardiomyopathy UK supporters have been helping a project to improve the lives of people with heart failure around the world.

Trustee Alison Fielding and support volunteers Richard Mindham and Tina Kinsella, who all have dilated cardiomyopathy, are working with the International Consortium for Health Outcomes Measurement (ICHOM).

It wants care to be measured by how well patients do after treatment, rather than the traditional way that use process measures, such as tests patients have and which drugs they are on.

In heart failure the new measurement might look at reductions in hospital readmissions, how many patients still have fluid retention problems, psychosocial outcomes and whether patients can return to normal life and work.

Tina (pictured above with Richard), who helps run our South London Cardiomyopathy Support Group, Alison and Richard have been among patients identifying the best outcomes in heart failure. ICHOM will now check the measurements agreed by the patients are suitable for all heart failure patients. Then it will prepare a standard for publication next year.