Current research studies

We encourage people to take part in clinical trials (where appropriate) and we promote research projects which can make a real difference to how cardiomyopathy is understood and treated. 

Below you can find more information about current research projects, and how you can get involved. 

CLINICAL: Heart Hive

Heart Hive is a new database for individuals who have shown an interest in participating in clinical trials and attempts to match people with researchers looking for trial participants. If you would like to sign up, visit the Heart Hive website.

Heart Hive Logo
NON CLINICAL: Cardiomyopathy and rehabilitation services

This social research looks at people's experience with cardiomyopathy who have taken cardiac rehabilitation programmes. The research is being conducted by an MSc student at De Montfort University, Leicester. You can read about the study and how to sign up here 

Rehab study
CLINICAL: REALM-DCM

This research study looks at the role of the Lamin gene in Dilated Cardiomyopathy. You can find out more about this project here. Clinical trials are being conducted at St Barts in London and the Queen Elizabeth Hospital in Glasgow and the Royal Brompton Hospital in London. If you are receiving treatment from these centres please ask your doctor about the trial.

REAL-M DCM logo
CLINICAL: CRUCIAL

Vascular dementia and heart failure represent major health burden to morbidity, mortality and quality of life.

Comorbidities (hypertension, aging, diabetes, etc.) affect all organs, but the brain and heart are especially sensitive to these chronic stresses resulting in cognitive impairment (a mental disorder) and heart failure (a non-mental disorder). These comorbidities also induce a reduction in microvascular density, called microvascular rarefaction. Diagnosis of microvascular rarefaction is limited by the inability to assess microvascular density. The CRUCIAL research project brings together a consortium of researchers, scientists and patients to develop a coordinated program to establish clinical tools to measure rarefaction and investigate the role of microvascular rarefaction in cognitive impairment and heart failure. You can find our more about this project here 

CRUCIAL project