Get involved in research

We believe that research plays a vital role in improving the lives of everyone affected by cardiomyopathy.

Sign up to hear about the latest opportunities to be part of cardiomyopathy research

Current opportunities

Predict Study

600 young people die every year from Sudden Cardiac Death due to dangerously fast heart beats. By studying both normal and abnormal hearts a team at Imperial College London are aiming to make a test that can tell if someone is at high risk of having these dangerous beats and give them a life-saving ICD. The team are also aiming to ensure people at low risk do not receive ICDs as there are risks involved in having one. 

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TRED study

If you have dilated cardiomyopathy and your heart function has improved over time, the TRED study would like to hear from you. This study is being led by researchers at the Royal Brompton Hospital, and is considering whether heart function improvement can mean that some people can come off their medication. 

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100,000 Genome Project

Cardiomyopathy runs in families and is caused by many different genetic mutations on many different genes.

Knowing which mutation is causing your cardiomyopathy can help in several ways – it can help you find out which other family members are at risk, may sometimes affect your treatment , and may make it possible for you to use an IVF technique to avoid having children who are affected.

For those who haven't had a genetic diagnosis and who don't know which mutation is causing their cardiomyopathy, a very large genetic project – the 100,000 Genome Project – is looking for more disease-causing gene mutations in people affected by diseases like cardiomyopathy and cancer.

Royal Brompton Cardiovascular Biomedical Research Unit

The NIHR Royal Brompton Cardiovascular Biomedical Research Unit is currently looking for patients with dilated cardiomyopathy to undergo a heart MRI scan as part of an ethics approved research study.

For more information please read the Patient Advert