Supporter stories

Read our supporter's first-hand accounts of living with Cardiomyopathy.

Sarah Bishop

Sarah Bishop's son Marty was diagnosed with hypertrophic cardiomyopathy (HCM) in the womb. She talks about the shock of the initial diagnosis and how Marty's doing six years on.

Read their story

Jenny Rees

Diagnosed with dilated cardiomyopathy (DCM) at 6 months and an ICD by the time I was 20, but I never really understood that I was different from anyone else

Read Jenny's story

Katie Denial

It took 2 years but I was eventually diagnosed with dilated cardiomyopathy in March 2015 after being rushed to A&E with severe breathlessness and other symptoms.

Read her story

Simon Morgan

At 46 Simon had discovered he'd inherited his father's dilated cardiomyopathy (DCM). He then got an ICD before being told he'd need a heart transplant.

Read Simon's story

Mike Jennings

Mike Jennings daughter was diagnosed with dilated cardiomyopathy when she was just 16 months old. Here he explains why he's running for Cardiomyopathy UK

Read his story

Paul Roome

GP and former dedicated runner Paul Roome, aged 41, talks about how Cardiomyopathy UK helped him to come to terms with a diagnosis of arrhythmogenic right ventricular cardiomyopathy (ARVC)

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Susan Manzi

Susan had to wait eight years before she was correctly diagnosed with hypertrophic cardiomyopathy (HCM). Now fitted with a biventricular pacemaker the teacher talks about her struggles with cardiomyopathy

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Mike and Aurelia

A cardiac arrest whilst playing rugby lead to being diagnosed with ARVC, leading to complications when Mike and Aurelia decided they wanted children.

Read their story