Work for us

We have a huge job to do. We want all people affected by cardiomyopathy to live a full life. To do this we need to grow and develop, and from time to time this means adding to our small staff team.

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Group of Cardiomyopathy UK volunteers waving cheer sticks at the London Marathon

Whatever the role, we want people who:

  • are passionate about changing the lives of people affected by cardiomyopathy;
  • really understand the condition and the impact it has;
  • know more than we do already and are happy to get stuck in.

Policy and Advocacy Manager

£32,00 Full time, 35 hours per week
Office/Home – Office based in Amersham, Buckinghamshire

This is an exciting opportunity to lead the charity’s Change Maker advocacy project working with our volunteer advocates to ensure they have the platform and skills to use their personal experience of cardiomyopathy to improve NHS services in their area. Working closely with the Head of Research and Policy and the CEO you will also play a key part in developing the charity’s national policy and strategy to improve the diagnosis, care and treatment of people with cardiomyopathy and myocarditis. You will bring with you experience of project delivery and working with volunteers, an understanding of the national healthcare systems in the UK and a passion for ensuring that the voice of people with lived experience is heard.

To apply for this post please send a C.V and cover letter outlining the reasons for your interest in this role and how you meet the job specification ( no more than two sides of A4 ) to Wendy.Edwards@cardiomyopathy.org If you would like an informal discussion about this opportunity prior to applying then please contact Wendy on the email address provided.

Download Job Description and Person Specification

Closing date for applications: 11 am Monday 2nd May 2022


Services Assistant

£12,600 Part time, 21 hours per week (FTE £21,000)
Office - Office based in Amersham, Buckinghamshire

This is a new opportunity to join the charity's services team providing administrative support across the charity's services and liaising with the NHS and other stakeholders to help ensure that people affected by cardiomyopathy can access the support and information that they need. 

To apply for this post please send a C.V and cover letter outlining the reasons for your interest in this role and how you meet the job specification ( no more than two sides of A4 ) to Alison.Thompson@cardiomyopathy.org  If you would like an informal discussion about this opportunity prior to applying then please contact Alison on the email address provided.

Download Job Description and Person Specification

Closing date for applications: 6pm Thursday 12th May 2022


Trustee Position - Digital Marketing and Communications (Voluntary)

We are looking to recruit an additional trustee who is able to complement our current trustee skill set by bringing high level digital, marketing and communications expertise. Most of our trustees have cardiomyopathy or myocarditis or are family members but we are open to applications from anyone who is committed to helping us achieve our mission.

Meetings are held 5/6 times a year in London and travel expenses are available. Training will be provided. The time commitment also includes taking leadership on a particular area and those looking to become an officer will have an opportunity to shadow current post holders.

If you are interested in this position please complete the application form (link below) and send it to chair@cardiomyopathy.org

If you would like an informal discussion about this opportunity and the work of the charity please contact Joel Rose, Chief Executive (joel.rose@cardiomyopathy.org


Office volunteer

Location: Amersham
This is a varied role which can be adapted to your skills and availability. It's a fantastic way to gain administrative or charity experience and an opportunity to work with our friendly staff team. This role may involve helping our fundraising team send out materials to our wonderful fundraisers, assisting with our social media or supplying information packs to GPs and hospitals. ‘On the job’ support will be provided by the Challenge Event Fundraiser, Community Fundraiser, Fundraising Assistant and Head of Fundraising and Marketing as relevant to the task.  

To apply please contact Charlotte Sills at charlotte.sills@cardiomyopathy.org