Take Part in Research

We encourage participation in research that aims to make a real difference in the lives of people living with cardiomyopathy.

This could mean participating in a clinical trial, reviewing patient information leaflets, completing a questionnaire, or even taking part in a focus group. By involving people with cardiomyopathy in research, we can ensure the patient perspective is addressed and ensure project outcomes are patient-focused.

We are here to support you to take part in a wide range of high-quality research studies from universities, NHS Trusts, and other accredited research institutions. Take a look at the list of opportunities below and contact the researchers directly for more information about how to get involved. There are usually set criteria for taking part and some people may not always meet the criteria of the study.

More opportunities to take part in research can also be found through the NIHR Be Part of Research page. If you are keen to take part in a clinical trial for a new therapy, we suggest you discuss this with your Healthcare Professional before signing up. Further information on patient participation in research is available from NHS Choices.

If you're a researcher looking for support with recruiting people with cardiomyopathy into your study, please email research@cardiomyopathy.org

CureHeart Patient Perspective Study

The CureHeart project, (http://www.cureheart.org/) aims to develop genetic therapies to treat inherited cardiomyopathies and is funded by The British Heart Foundation

The CureHeart Patient Perspectives Study is an important part of the overall CureHeart project. It aims to understand people's experiences of cardiomyopathy, views of current and future treatments, and issues accessing cardiomyopathy care in the UK and the USA. This questionnaire is the first part of the Patient Perspectives Study and will take around 5-10 minutes. In the second part of this study, we will invite some people who complete the questionnaire (not everyone) to take part in a research interview (online or by phone).  

If you have experience of cardiomyopathy personally or in a relative, and are aged 16 or over, we value your participation in the questionnaire. You may choose whether you wish to be contacted about an interview, and about future studies. 

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Cell Therapy for Dilated Cardiomyopathy

Queen Mary University of London & Barts Health NHS Trust are looking for people age 18-85 with heart failure due to dilated cardiomyopathy for a trial of cell therapy (using your own cells taken from your bone marrow) to see if it will improve your heart failure symptoms.

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DCM Trial

Researchers at University Hospital Southampton NHS Foundation Trust/University of Southampton are looking to recruit patients for a new clinical trial called The BRITISH study. The study will look at the importance of implantable cardioverter defibrillators (ICDs) in treating cardiac arrest in people with non-ischaemic cardiomyopathy (NICM).

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University of Southampton
GO-DCM Study

Researchers at Imperial College, University of London are leading a new study looking at improving diagnosis and treatment for people living with Dilated Cardiomyopathy (DCM).

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MITQ Study

Researchers at Imperial College London and the Royal Brompton Hospital are recruiting patients into a research study with a diagnosis of dilated cardiomyopathy, whose heart function remains impaired despite usual therapy.

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Imperial College London
Heart Hive – Register for Research

Heart Hive is a new database for individuals who have shown an interest in participating in clinical trials and attempts to match people with researchers looking for trial participants.

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MyClimb Study

MyClimb are looking for parents of children with paediatric cardiomyopathy. The study is designed to collect and evaluate information on the course of cardiomyopathy in children and adolescents with the MYBPC3 genetic mutation.

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MyClimb Study