We encourage participation in research that aims to make a real difference in the lives of people living with cardiomyopathy.
This could mean participating in a clinical trial, reviewing patient information leaflets, completing a questionnaire, or even taking part in a focus group. By involving people with cardiomyopathy in research, we can ensure the patient perspective is addressed and ensure project outcomes are patient-focused.
We are here to support you to take part in a wide range of high-quality research studies from universities, NHS Trusts, and other accredited research institutions. Take a look at the list of opportunities below and contact the researchers directly for more information about how to get involved. There are usually set criteria for taking part and some people may not always meet the criteria of the study.
More opportunities to take part in research can also be found through the NIHR Be Part of Research page. If you are keen to take part in a clinical trial for a new therapy, we suggest you discuss this with your Healthcare Professional before signing up. Further information on patient participation in research is available from NHS Choices.
If you're a researcher looking for support with recruiting people with cardiomyopathy into your study, please email research@cardiomyopathy.org.
Researchers at University Hospital Southampton NHS Foundation Trust/University of Southampton are looking to recruit patients for a new clinical trial called The BRITISH study. The study will look at the importance of implantable cardioverter defibrillators (ICDs) in treating cardiac arrest in people with non-ischaemic cardiomyopathy (NICM).
Researchers at St George's Hospital NHS Trust are wanting to find out how being diagnosed with cardiomyopathy changes people's attitude towards physical activity. They are inviting people to take part in a one-hour interview online to gather information.
If you would like to find out more about the study and what it entails, please read the Participant Information Sheet here and contact m2007356@sgul.ac.uk if you would like to take part.
Researchers at Imperial College, University of London are leading a new study looking at improving diagnosis and treatment for people living with Dilated Cardiomyopathy (DCM).
Researchers at the University of Birmingham are looking for pregnant women (28 weeks or more) and mothers of under 2’s with cardiomyopathy and another health condition to take part in a survey.
Researchers at Imperial College London and the Royal Brompton Hospital are recruiting patients into a research study with a diagnosis of dilated cardiomyopathy, whose heart function remains impaired despite usual therapy.
Heart Hive is a new database for individuals who have shown an interest in participating in clinical trials and attempts to match people with researchers looking for trial participants.
MyClimb are looking for parents of children with paediatric cardiomyopathy. The study is designed to collect and evaluate information on the course of cardiomyopathy in children and adolescents with the MYBPC3 genetic mutation.
Want to talk about how a genetic result has impacted your life? Would you like to contribute to valuable research? How has your genetic result impacted your decisions in telling family members, lifestyle choices and planning a family? We are looking for adults (18+) who have had genetic testing that confirms a genetic diagnosis of Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant), Huntington’s Disease (HD), Hypertrophic Cardiomyopathy (HCM), or Long QT Syndrome (LQTS), to take part in a study exploring responsibilities associated with your genetic result.
