We encourage participation in research that aims to make a real difference in the lives of people living with cardiomyopathy.
This could mean participating in a clinical trial, reviewing patient information leaflets, completing a questionnaire, or even taking part in a focus group. By involving people with cardiomyopathy in research, we can ensure the patient perspective is addressed and ensure project outcomes are patient-focused.
We are here to support you to take part in a wide range of high-quality research studies from universities, NHS Trusts, and other accredited research institutions. Take a look at the list of opportunities below and contact the researchers directly for more information about how to get involved. There are usually set criteria for taking part and some people may not always meet the criteria of the study.
More opportunities to take part in research can also be found through the NIHR Be Part of Research page. If you are keen to take part in a clinical trial for a new therapy, we suggest you discuss this with your Healthcare Professional before signing up. Further information on patient participation in research is available from NHS Choices.
If you're a researcher looking for support with recruiting people with cardiomyopathy into your study, please email research@cardiomyopathy.org.
Heart Hive is a new database for individuals who have shown an interest in participating in clinical trials and attempts to match people with researchers looking for trial participants.
This UK-wide study aims to understand the best test(s) to investigate heart failure. Current NHS practice includes a coronary angiogram (which is an expensive and often uncomfortable test) to rule out coronary artery disease. But there are other common causes of heart failure including dilated cardiomyopathy (DCM). CROSS-HF aims to help people with heart failure be diagnosed faster and reduce the need for a coronary angiogram.
Researchers at University Hospital Southampton NHS Foundation Trust/University of Southampton are looking to recruit patients for a new clinical trial called The BRITISH study. The study will look at the importance of implantable cardioverter defibrillators (ICDs) in treating cardiac arrest in people with non-ischaemic cardiomyopathy (NICM).
Researchers at Imperial College London and the Royal Brompton Hospital are recruiting patients into a research study with a diagnosis of dilated cardiomyopathy, whose heart function remains impaired despite usual therapy.
MyClimb are looking for parents of children with paediatric cardiomyopathy. The study is designed to collect and evaluate information on the course of cardiomyopathy in children and adolescents with the MYBPC3 genetic mutation.
Queen Mary University of London & Barts Health NHS Trust are looking for people age 18-85 with heart failure due to dilated cardiomyopathy for a trial of cell therapy (using your own cells taken from your bone marrow) to see if it will improve your heart failure symptoms.
