Our Cardiomyopathy UK Specialist Nurses are here to listen, answer your questions and share their expertise for as long as you need. Our free helpline is staffed by our team of specialist cardiac support nurses, Jayne, Caryl and Emma.
* Please note that our nurses don’t have access to your medical notes, can’t liaise with your healthcare team and cannot provide interpretation of electrocardiograms (ECG’s), rhythm strips, echocardiograms, cardiac MRI scans or any clinical investigations.
You can speak to our nurses about anything - worries about potential symptoms, whether you should see a GP, understanding your diagnosis, treatment, side effects, genetic testing or simply about how you’re feeling.
Anyone can call our helpline, whether you have a diagnosis yourself or care for someone else with cardiomyopathy. Whether you’re unsure if you might have cardiomyopathy, are newly diagnosed or have been living with the condition for some time, our nurses are here for you.
Every other Wednesday, our paediatric cardiac nurse, Emma, runs an out-of-hours helpline service for parents, carers and young people. The lines are open from 6pm until 9pm.
Your call to the Nurse Helpline is strictly confidential so you can talk openly and know that our helpline is a safe, confidential space.
Cardiomyopathy UK is committed to providing non-discriminatory services. We take all complaints seriously and ensure that they are promptly investigated.
The HLP help us to deliver the best service we can to the people we support. They assist helplines to connect and work in partnership through promoting excellence, encouraging innovation, and supporting inclusivity whilst strengthening our commitment to exceptional sector standards.