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  • About cardiomyopathy
    • Newly diagnosed
      • What is cardiomyopathy?
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      • Request a welcome pack
    • Types of cardiomyopathy
      • Arrhythmogenic (ACM)
      • Dilated (DCM)
      • Hypertrophic (HCM)
      • Left Ventricular Non-Compaction (LVNC)
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      • Peripartum cardiomyopathy
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  • Newly diagnosed
    • What is cardiomyopathy?
    • Genetics and cardiomyopathy
    • Request a welcome pack
  • Types of cardiomyopathy
    • Arrhythmogenic (ACM)
    • Dilated (DCM)
    • Hypertrophic (HCM)
    • Left Ventricular Non-Compaction (LVNC)
    • Myocarditis
    • Peripartum cardiomyopathy
    • Restrictive (RCM)
    • Takotsubo
    • Related disorders
  • Treatments
    • Common types of medication
    • Having a device
    • Types of surgery
  • Heart failure and cardiomyopathy
    • Advanced heart failure
  • Information resources
    • Order information resources
    • Request resources for a hospital or GP
    • Look up a medical word
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Here for everyone affected by cardiomyopathy

Speak to a cardiomyopathy support nurse
0800 018 1024
Lines open Mon-Fri 8.30 am-4.30 pm
Speak to a cardiomyopathy support nurse
0800 018 1024
Lines open Mon-Fri 8.30 am-4.30 pm

#InMyFamily

Many families share traditions, mannerisms, passions, and hobbies, but they don’t always know that they may share health conditions, like cardiomyopathy, too.

Three families have shared their experiences living with the condition, how they’ve navigated the diagnosis, and why they would encourage people to talk about their heart health and the symptoms of cardiomyopathy – especially where it may be something that could run #InMyFamily.

Find out more

What is cardiomyopathy?

Cardiomyopathy is a disease of the heart muscle: 'cardio’ means heart, ‘myo’ means muscle and ‘pathy’ means disease.

It isn’t a single condition, but a group of conditions that affect the structure of the heart and reduce its ability to pump blood around the body. Around 1 in 250 people in the UK are affected. 

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TCS London Marathon 2023
Join Team Cardio and experience a day to remember at this iconic event.
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  • Events
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    1
    Jan
    2022
    Skydive
    Skydiving
    Skydives
    (*Available for various dates and locations) Take on the ultimate adrenaline challenge! Experience an amazing, once in a lifetime opportunity and help
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  • 9-10
    Jul
    2022
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    Walks and Treks
    Peak District Challenge
    Join 2,000 adventurers and walk, jog or run this challenge in the fabulous Peak District National Park. This gem in the Heart of England offers 100km
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  • 5-7
    Aug
    2022
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    Cycling
    Coast to Coast Cycle
    Conquer the breadth of Britain with a Coast to Coast cycle ride and raise funds for Cardiomyopathy UK! Starting with back tyres dipped in the Irish
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All Events
  • News 20 June 2022
    Our Support Group Meetings This July
    Here you can find all the support group meetings we are holding through the month of July! To join a
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  • News 15 June 2022
    10 Tips to Manage in Hot Weather
    Anyone can find the hot weather difficult to cope with, but if you have a heart condition you might
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  • News 14 June 2022
    Coping With Tiredness and Fatigue
    There can be various reasons you may feel tired or fatigued when you have a diagnosis of
    Read on
  • Lifestyle Management 21 March 2022
    Amiodarone
    What is Amiodarone? Amiodarone is prescribed to help regulate your heart’s rhythm and rate, it is an
    Read on
  • Lifestyle Management 25 October 2021
    The Covid booster vaccination
    Who will receive a Covid booster vaccination? People aged 50 or over & younger people at risk are
    Read on
  • Lifestyle Management 20 October 2021
    Getting your flu vaccine
    Flu is caused by the influenza virus, which infects the windpipe and lungs. Some people are more
    Read on
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About cardiomyopathy

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Cardiomyopathy UK, 75a Woodside Road, Amersham, Buckinghamshire, HP6 6AA United Kingdom
Office: 01494 791224    Helpline: 0800 018 1024    Email: contact@cardiomyopathy.org

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  • About cardiomyopathy
    • Newly diagnosed
      • What is cardiomyopathy?
      • Genetics and cardiomyopathy
      • Request a welcome pack
    • Types of cardiomyopathy
      • Arrhythmogenic (ACM)
      • Dilated (DCM)
      • Hypertrophic (HCM)
      • Left Ventricular Non-Compaction (LVNC)
      • Myocarditis
      • Peripartum cardiomyopathy
      • Restrictive (RCM)
      • Takotsubo
      • Related disorders
    • Treatments
      • Common types of medication
        • FAQs on medication
      • Having a device
      • Types of surgery
    • Heart failure and cardiomyopathy
      • Advanced heart failure
    • Information resources
      • Order information resources
      • Request resources for a hospital or GP
      • Look up a medical word
  • Living with cardiomyopathy
    • How we can help you
      • In-Clinic Peer Support
      • Support Groups
        • ACM (including ARVC) London Support Group
        • ACM (including ARVC) Online Support Group
        • Advanced Heart Failure (Towards Transplant) Online Support Group
        • Atrial Fibrillation Online Support Group
        • Birmingham & West Midlands Support Group
        • Bristol & Surrounds Support Group
        • Buckinghamshire Support Group
        • CRT Devices Online Support Group
        • Cheshire & Merseyside Support Group
        • Coffee & Catch Up
        • DCM Online Support Group
        • Devon Support Group
        • Dorset Support Group
        • East Anglia Support Group
        • Emotional Well-Being Online Support Group
        • Genetics & Cardiomyopathy Online Support Group
        • HCM Online Support Group
        • ICD Online Support Group
        • Kent Support Group
        • LVNC Online Support Group
        • Leeds & York Support Group
        • Medications & Cardiomyopathy Online Support Group
        • North East Support Group
        • North London Support Group
        • North Wales (Gogledd Cymru) Support Group
        • Northern Ireland Support Group
        • Oxfordshire & Thames Valley Support Group
        • Parents & Carers Online Support Group
        • Self-Care & Management of Heart Failure Online Support Group
        • Sheffield & South Yorkshire Support Group
        • South London Support Group
        • South Wales Support Group
        • Sussex Support Group
        • Takotsubo Online Support Group
        • West London Support Group
        • West Scotland Support Group
      • Telephone Peer Support
    • Families and young people
      • Parents, caregivers and family members
      • Support for carers
      • Young people
        • Our Youth Panel
    • Lifestyle and exercise
      • Eating healthily
      • Keeping active
    • Emotional wellbeing
      • Getting support with your wellbeing
    • Get practical support
      • Benefits
      • Driving
      • Life insurance
      • Returning to work and your rights
      • Travel insurance
  • Our research & campaigns
    • Getting better treatment
      • Our Change Agenda
      • Meet our Change Makers
      • Cardiac screening
    • Raising awareness
      • #InMyFamily
      • Awareness campaigns
      • Cardiomyopathy Awareness Week
      • Share your story
    • Understanding more
      • Our research
      • Supporting research
      • Take part in research
        • National Survey 2022
      • National Survey 2022
  • Support us
    • Fundraise
      • Take on a challenge
        • Bath Half Marathon
        • Bournemouth Half Marathon
        • Brighton Marathon 
        • Cardiff Half Marathon 2022
        • Coast to Coast Cycle
        • Edinburgh Marathon Festival
        • Event 2
        • Great North Run 2021
        • Great North Run
        • Hackney Half 2021
        • Hackney Half 2023
        • Isle of Wight challenge
        • Jurassic Coast Challenge
        • London Landmarks Half Marathon 2023
        • London Marathon 2023
        • London Winter Walk
        • London to Brighton Challenge
        • London to Paris
        • Manchester Half Marathon
        • National Three Peaks Challenge
        • Old event
        • Peak District Challenge
        • Royal Parks Half Marathon
        • Run Bournemouth
        • Santa in the City
        • Skydives
        • South Coast Challenge
        • TCS London Marathon 2022
        • Thames Path Challenge
        • Thames Path Challenge
      • Do your own thing
        • Celebrate a special occasion
        • Other ways to give
        • Cardiomyopathy UK's Tea Party
      • Give in memory
        • Create an In Memory page
        • Give at a funeral service
      • 30-Day Challenge
      • Become a corporate partner
      • Give a gift in your Will
    • Volunteer
      • Find your volunteer role
      • Enquire about volunteering
    • Stay in touch
      • Contact us
      • Read our My Life magazine
    • Donate
  • About us
    • Our impact
    • Our approach
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    • Our people
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  • News & blogs
    • Latest news
      • "I have so much gratitude for my health, and for the sheer joy of running"
      • 12 Days of Christmas Challenge
      • 2021 ESC Guidelines updates for heart failure
      • 30 Day Home Challenge
      • A 25th anniversary for Patricia's heart transplant
      • A Bright Future Together
      • A Good Night's Sleep
      • Amy's story: friendship, peer support and climbing mountains
      • An Update on Mavacamten
      • Are you ready for a challenge?
      • Beating For Two
      • Cardiomyopathy and the COVID-19 Vaccination
      • Cardiomyopathy and the COVID-19 Vaccine
      • Change the World of Cardiomyopathy - Our Urgent Appeal
      • Charity’s Update on COVID-19
      • Chloe's Story
      • Christian Eriksen's cardiac arrest
      • Coping With Tiredness and Fatigue
      • Coping with stress and your mental wellbeing
      • Coronavirus - update on our policies and services
      • Coronavirus Update
      • Coronavirus Update
      • Coronavirus
      • Covid-19 mRNA vaccines statement
      • Fasting During Ramadan
      • Good luck Team Scouse - Remembering Alex ‘Scouse’ Pickett
      • Happy Volunteers' Week!
      • How To Cope In Warmer Weather
      • Introducing our new trustee, Libby Jarman
      • Jane's Story
      • Jazmin's 30-day Challenge
      • Karen's 30 Day Home Challenge
      • Lisa's Story
      • Lucy's Story
      • Marty's Story
      • New BBC Children in Need Activity Pack!
      • New Heart Hive research on the effect of COVID-19 on people with Cardiomyopathy
      • New smartphone can interfere with ICD’s and pacemakers
      • Organ Donation Week-'June and I count our blessings every day'
      • Organ Donation in England
      • Our 30 Day Home Challenge Journeys
      • Our latest My Life magazine!
      • Our support groups this May
      • Paul's guaranteed to get a runner's high
      • Positive results for new HCM drug
      • Queen's Birthday Honours list for Alison Fielding
      • September Steps 2021 - Jodie's Story
      • Steph's story
      • Third Place for Hollis in Himalayan 100 Challenge
      • Tony's Story
      • Tracy's Story
      • Walking 500 miles for Jenny
      • Why you should give regularly
      • Wireless in-heart device
      • Zai's Story
    • Tips and Advice
      • Amiodarone
      • Coping with a diagnosis of cardiomyopathy
      • Coping with the cold weather
      • Exercise in Children
      • Finding the right Travel Insurance
      • Free Vitamin D
      • Getting your flu vaccine
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      • ICD's- Your Questions Answered
      • Ischaemic Cardiomyopathy
      • Myocarditis in children
      • Smoking
      • The Covid booster vaccination
      • Tips and Advice
      • What does Ischaemic Cardiomyopathy mean?
      • What is Cardiac Remodelling?
    • Media contact
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