Sheffield & South Yorkshire Support Group

This support group based in Sheffield is for people with any form of cardiomyopathy, their family members, friends and supporters. 

This group is run by trained volunteer Julie Taylor (pictured on the left in the photo below).

Julie has been a Support Group Leader since March 2019 and has established a great group of members who too have become friends and continue to support each other.

In the wake of the COVID-19 pandemic, this group will now alternate between in-person and online (using Zoom) meetings, which will provide more flexibility for those members who live further away, do shift work, etc.

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Julie’s Story- Julie has ARVC and was diagnosed in 1993. This was identified as genetic in 2009 following the sudden death of her sister in 2007. She had an ICD fitted in 2010 as a precaution, which was changed to an S-ICD in 2018. Julie retired from the NHS in November 2023 after 44 years service and has recently been elected a patient governor at Sheffield Teaching Hospitals NHS Foundation Trust. She is a Heart to Heart Support Volunteer for the charity and a patient representative on the BHF CureHeart project to find a cure for inherited cardiomyopathies. 

Next meeting(s)

• Saturday 13th July 11am - in-person

  Burton Hall

  The Burton Street Foundation

  57 Burton Street

  Sheffield S6 2HH

  Support Group Leader Julie will be talking about her cardiomyopathy journey and encouraging others to join in and share their stories (if they want to.) This will include a general catch up with refreshments provided.

  Facilities

  Wheelchair access, free parking, refreshments

Future meetings 

• Wednesday 18th September 2024 18:30 - 20:30 - online
  Guest speaker: Prof Hugh Watkins, Professor of Cardiology John Radcliffe, Oxford
   
• Saturday 23rd November 2024 - in-person

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For details of how to join this meeting, or for more information about this support group, please contact our Services team:

services@cardiomyopathy.org