Our people: who we are

People are at the centre of our charity. Our work depends on the generosity of our supporters and a big volunteer team, supported by our staff team, and with our strategy led by trustees.

Our strategy is decided by our board of trustees, who are volunteers and most of them are affected in some way by cardiomyopathy.

Our staff team include cardiomyopathy support nurses and an information manager to help people affected by cardiomyopathy. We have recently appointed a new President Professor Perry Elliott, and Vice President Dr Gerry Carr-White.

All that we do is only possible thanks to the commitment and dedication of our volunteers and supporters.

Our presidents

President: Professor Perry Elliott

President Professor Perry Elliott

Professor Elliott is head of the UCL Centre for Heart Muscle Disease and lead of the Inherited Cardiovascular Disease Unit at the Bart’s Heart Centre, London, UK. Prof Elliott studied medicine at St. Thomas’s Hospital Medical School, London. After qualifying in 1987 he trained in general medicine, gaining membership of the Royal College of Physicians in 1991, and completed his general cardiology training at St. George’s Hospital Medical School, London. He was appointed as Senior Lecturer first at St. George’s Hospital in 1999 and then at UCL in 2003. He was promoted to Reader in Inherited Cardiac Disease in 2005 and became a full Professor at UCL in 2012.

He was elected as a Fellow of the European Society of Cardiology (ESC) in 2005, is past Chairman of the ESC Working Group on Myocardial and Pericardial Diseases (2010–2012), and chairs the ESC Guideline Task Force on Hypertrophic Cardiomyopathy and the Executive Committee for the European Outcomes Research Programme registry on cardiomyopathies. He is cardiovascular lead for the North Thames NHS Genomic Medicine Centre and is President of Cardiomyopathy UK, Europe’s foremost charity specifically for patients with heart muscle disease. From 2009 to 2013, he was Deputy Editor of The Heart Journal and is currently Deputy Editor for the International Journal of Cardiology.

Over the past 25 years, Prof Elliott has established an international reputation in the field of heart muscle disease, authoring more than 400 peer-reviewed papers on the subject. He develops diagnostic standards, risk stratification tools and clinical service models based on some of Europe’s largest inherited heart disease cohorts, fostering industry collaborations in sequence interpretation, therapeutic trials and multicentre research partnerships.

Vice President: Dr Gerry Carr-White

Dr Gerry Carr-White, Vice PresidentDr Carr-White is a Consultant Cardiologist at Guy’s and St Thomas’Hospital, London and a Reader in heart failure and Inherited cardiac Diseases at King’s College London. At St Thomas’ Hospital, he is the clinical lead for cardiology, heart failure and inherited cardiac diseases and leads the inherited cardiac disease service across King’s Health Partners which now sees in excess of 5000 patients a year.

His research interests include imaging-guided assessment and modelling of cardiomyopathies and heart failure and assessment, and optimisation of cardiac resynchronisation therapy. He has published in excess of 100 peer-reviewed papers in this field. Previously he has been the south east London Cardiac Network lead for heart failure and inherited cardiac diseases and has sat on the national clinical reference group for inherited cardiac diseases advising NHS England.


Our trustees

Our trustee board, at their meeting in September 2017


Meet the board:


Our staff team: here to help you